I have been taking adderal for a good 15 years. The highest does and is not helping. I took adderal originally for adhd. But it doesn’t seem to work anymore. Do you have any suggestions?
Provigil to stay awake during daytime, but doesn't help with concentration and focus.
I want to know about one of your best days you have had with your narcolepsy. Tell me how you felt, who you were with , everything.
I hate to answer this question because my BEST DAY is Thursday is my first day off I sleep the whole 24 hours my children are grown I have a dog I do take her out a couple times but I do not get out… read more
Hi everyone 👋🏻 Wondering if anyone else here has type 2 narc? (Narcolepsy without cataplexy) I’ve tried researching it but even less is known about type 2 than 1. Just going through the motions..
I was told I have narcolepsy from a doctor but never had the sleep test to see what kind I have!
Not having the best results, definitely need something better. I still get quite tired by lunchtime and often have a hard time not dozing off. What do you take now and does it work? Any helpful tips… read more
Hi guys been awhile since I've posted. I've had increasing trouble swallowing while eating, I thought it was something else like muscle weakness from a neuro issue or something. But now I'm thinking maybe it's narcolepsy microsleep episodes. I haven't started any treatment yet because I have trouble swallowing (pills especially) but I need to try treatment because I'm going to literally starve to death if I keep having these issues while eating. Here is what it feels like, 1st I'm tired all the… read more
I have had a similar difficulty, only I feel like I am going to choke! My mother had severe GERD, and ut would iccur with an unsettling randomness.
I haven't brought it up with ANYONE, because I… read more
Has anyone had experience or know about biofeedback headbands that monitor sleep cycles and provide binaural beats that can help regulate sleep cycles? I came across an article about a Colorado engineer that developed a device foe his teenage daughter that was diagnosed with narcolepsy. He marketed the device under the name Sleep Shepherd Blue. I started trying to find the device and came across another called Dreem. Seems that both devices were purchased and removed from the market by someone… read more
I researched these as well, and came to the same conclusions. I did find a Dreem 2 for sale in India. https://india.dreem.com/. I have not reached out to them to see if they will ship to the US… read more
Hi everyone, I haven't had time to check into seeing about my sleep study that my doctor wanted me to do after I told him my medication after 16 years doesn't do as well. He is a family practitioner and doesn't know that much about narcolepsy and told me to go get another sleep study done. The more I research about sleep studies the more scared I become. I've seen where some are not accurate. And another thing I dont think I can go without my anxiety medication and we have to stop all… read more
They didn't tell me to stop my meds.
I don't know - selecting people for my "team" seems playing favorites with people I don't know. That seems weird to me.
Hi @A MyNarcolepsyTeam Member! I'm a Community Manager on the MyNarcolepsyTeam Support team. While I don't have narcolepsy myself, I'm available if you ever have any questions about how to use the… read more
Diagnosed with narcolepsy 21 years ago. Moved to a new state. Had to apply for Medicaid which took time but once approved I finally was able to get into a sleep doctor. I’ve brought with me documentation of every prescription I’ve been provided for the past 21 years. Yet she refuses to prescribe me the medicine I need to survive until another sleep study is performed. She knows I only have 3 pills left. She said she would expedite the sleep study however as soon as they can get me in is… read more
Boy, it often seems that way , doesn't it? I moved to another state after a Medicare advisor said I would have no difficulty getting qualified for Medicaid in my new state. I took the plunge and… read more