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I want to know about one of your best days you have had with your narcolepsy. Tell me how you felt, who you were with , everything.
I hate to answer this question because my BEST DAY is Thursday is my first day off I sleep the whole 24 hours my children are grown I have a dog I do take her out a couple times but I do not get out⦠read more
Since the hypothalamus gland is affected what type of symptoms have you experienced besides excessive sleepiness?
Not sure if all of my bizarre symptoms are directly related to narcolepsy but some might be.
The symptoms I am trying to figure out are :
Low grade fevers (10-15 per month)
Subclinical hypothyroidism with normal t3 &t4
Extreme chocolate milk craving (about 40oz a day)
No appetite, without weight loss , no thirst either
Very interested in others symptoms, sometimes patients can⦠read more
I used to get low appetite when I'm sleepy during the day and hunger attacks at night when I wake up. This in the long run led to undernourishment. Thankfully, my neurologists have prescibed a⦠read more
Is anyone currently being treated for narcolepsy for dopamine inducing sleep peptides? If so - do you find them effective?
With for the last 5 years I've had all incidents of falling asleep without being wake up. Mostly happens when I'm very stressed out or very angry. I have found myself falling sleep at restaurants ,at my job and at home where nobody can get me to wake up or respond. Is there a thing called stress related narcolepsy? Can some help. I will be going to specialist when I got insurance again. Thanks for your time.
I hope it goes very well!
I am currently living with my parents because I can not afford to live on my own. There is no other options for me right now but I just do not know how much longer I can put up with my mom. She never has understood and I don't know if she ever will.
Ask Her if She would be willing to go to the Dr. with You. Maybe he/she can explain the situation.
I was diagnosed in 2015 which was my first and only test; should a patient be tested again after so many years
@A MyNarcolepsyTeam Member Hello ππΎ
I am also waiting for another study
Which is scheduled for August.
Hi everyone ππ» Wondering if anyone else here has type 2 narc? (Narcolepsy without cataplexy) Iβve tried researching it but even less is known about type 2 than 1. Just going through the motions..
I was told I have narcolepsy from a doctor but never had the sleep test to see what kind I have!
Hi everyone, I haven't had time to check into seeing about my sleep study that my doctor wanted me to do after I told him my medication after 16 years doesn't do as well. He is a family practitioner and doesn't know that much about narcolepsy and told me to go get another sleep study done. The more I research about sleep studies the more scared I become. I've seen where some are not accurate. And another thing I dont think I can go without my anxiety medication and we have to stop all⦠read more
They didn't tell me to stop my meds.