What Questions Should I Be Asking My Doctor/specialist? | MyNarcolepsyTeam

Connect with others who understand.

sign up Log in
Resources
About MyNarcolepsyTeam
Powered By
Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
What Questions Should I Be Asking My Doctor/specialist?
A MyNarcolepsyTeam Member asked a question 💭
posted May 18, 2022
•
Be the first to like/hug
A MyNarcolepsyTeam Member

Ask for a sleep study; MSLT in particular because you suspect Narcolepsy. (Multiple Sleep Latency Test) after they do the initial sleep study (for sleep apnea). Make sure the order includes MSLT before you go and waste your time and money. And do not do an in home test; tell them you specifically want to do it at a sleep lab. In home tests are VERY inaccurate and much less data collected.

posted May 19, 2022
A MyNarcolepsyTeam Member

My doctor did not take me seriously - now he is out 'indefinitely' so I am being reassigned to a new doctor - another neurologist. My PCP'S office did refer me to a sleep specialist - I go to that appointment on June 1st. I have to 'start over' with a Neurologist at UC Davis. I am beyond frustrated because I had an incident where a client perceived that I was impaired. I believe it was a combination of being in pain from oral surgery and narcolepsy. It is impacting my career now. The doctors do not take me seriously - they seem to think that, because I am 72, my quality of life is behind me. It is so wrong for them to not listen to me - so I am going to see both doctors to see if either one takes me seriously. I am beyond tired!!

posted May 19, 2022
A MyNarcolepsyTeam Member

Have you already been diagnosed with Narcolepsy? Can you make your question a little more specific?

posted May 18, 2022
A MyNarcolepsyTeam Member

And read about the test retest reliability of the test. It surprised me.

posted May 28, 2022

Related content

View All
Decreased Appetite, Low Grade Fevers, Any Unusual Symptoms?
A MyNarcolepsyTeam Member asked a question 💭
What Specialist Will I Need To See To Visit In Order To Figure Out If I Have Narcolepsy.
A MyNarcolepsyTeam Member asked a question 💭
Baltimore Doctors?
A MyNarcolepsyTeam Member asked a question 💭
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in