I don't have much in the way of support. My family thinks I am exaggerating my tiredness and a few think I am being lazy. I am in the process of trying to build a support circle of friends who can help me with things I struggle with, like keeping my apartment clutter-free, etc. It's a challenge trying to work full time and take care of all the other things in life. Whew!

Yes, I know. They don’t understand, or want to understand, the problems you face everyday. It’s not just the falling asleep during the day, or not being able to sleep at night, but the forgetfulness, memory loss, not being able to walk a straight line for any distance. It’s each and everyday you face the same things again and again without any support. It hurts, not just emotionally but physically too. Hang in there as eventually they may understand as more and more research is being done on this subject.

❤️🤗😭

How do I thank them for their what?? Lol!! My 2 adult daughters have simply accepted this is who and how I am, and it's all just incorporated into everyday life, but then again, I don't see them often. I don't have much other living family anymore, but whenever I mention it for whatever reason to friends or family it's as if I made a generic comment about the weather and is not addressed at all, and in the ignoring of it, I feel I get no support at all, as though they don't believe me or have a clue whatsoever about what it really is.

My support system is non-existent, I see when someone encounters a subject they are unfamiliar with but have an interest in typically they will do a google search but with this condition nothing. I've even told people to google it when they think they know all about it and how I'm faking it or just being lazy. They never do because they don't want to find out they're wrong

Can you hum a few bars? I have a very loving family but they have no comprehension or sympathy for my condition.