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Is It Possible To Have Cataplexy Without Narcolepsy?

A MyNarcolepsyTeam Member asked a question 💭
West Covina, CA

I can't seem to find any answers on whether or not cataplexy can occur without having narcolepsy what causes the cataplexy?

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A MyNarcolepsyTeam Member

the answer is yes. You can have even narcolepsy without cataplexy, and as it has been my case, developped cataplexy sometimes partial or full ( as per myself) years after the first effects or bouts of… read more

Does Any One Eles Have Narcolepsy1 And Sleep Apnea?

A MyNarcolepsyTeam Member asked a question 💭
West Covina, CA

i find that having narcolepsy makes the cpap not worth the anxiety, it does not help me

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A MyNarcolepsyTeam Member

I have narcolepsy 2 and sleep apnea. Using the CPAP didn't make a significant difference in daytime sleepines but it's better for my heart to use it. So, I do, even though the masks irritate my skin.

Does Anyone Ever Spontaneously Come Out Of This Ever? I’m Just Looking For Any Hope Whatsoever.

A MyNarcolepsyTeam Member asked a question 💭
Kcmo
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A MyNarcolepsyTeam Member

Yes, there are cases that have totally recovered. Very uncommon but it does happen.

Would You Say You Have Good Days And Bad Days With Narcolepsy?

A MyNarcolepsyTeam Member asked a question 💭

I have been on Modafinil for over a year. My doctor finally sent me to a sleep specialist and I will have my sleep study and mslt in a couple weeks. I never feel fully rested, but there are some days that I can’t go more than 2-3 hours without a nap. I get very drowsy and my eyelids get heavy. On my bad days, this happens every 2-3hrs all day long.

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A MyNarcolepsyTeam Member

I would say before my diagnosis and medication vyvanse x2 a day , EVERYDAY was a bad day with narcolepsy there was no ups and downs it was constant urges to sleep every hour or 2 hours at the most… read more

Can Someone Please Help Me Understand Why Narcolepsy Takes So Long To Diagnose? What's Wrong With Our Society?

A MyNarcolepsyTeam Member asked a question 💭

Why on earth does narcolepsy take so long to diagnose? I've been trying hard to find some sort of logical, rational explanation, some sort of justification, but I can't find it. I know it's not a well-known disease, I know we can't expect people to know there's some sort of neurological issue with lack of orexin and an autoimmune reaction behind our symptoms, but although friends, family, doctors may not know the exact cause of the symptoms, I think they know and can see we are not well and are… read more

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A MyNarcolepsyTeam Member

Hello, Rina- I don't know how your lumbar puncture went, but... People with Narcolepsy Type 1 will indicate very low levels of Orexin/ Hypocretin and usually have cataplexy
Now the tricky part-… read more

Why Did I Lose Myself And My Personality And The Person I Was Just Cause I Got Narcolepsy. It Changed Me Completely. Why Is This?

A MyNarcolepsyTeam Member asked a question 💭

narcolepsy by cataplexy

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Does Anyone Here With Diagnosed Narcolepsy Also Have Fibromyalgia? What About Adult ADHD?

A MyNarcolepsyTeam Member asked a question 💭
Mcallen, TX
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A MyNarcolepsyTeam Member

I have fibromyalgia and ADD

Do Stimulants Help?

A MyNarcolepsyTeam Member asked a question 💭
La Mesa, CA

When I was first diagnosed beginning of high school, my doctor had me try a couple different treatments. One of them was Ritalin, but I was wary of pills and didn't want to go that route. College has really been testing my limits, and I'm starting to fall behind. Do stimulants help any of you guys? Which kinds help the most? Do side effects outweigh the pros? Thank you!

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A MyNarcolepsyTeam Member

I’m taking Modafinil and it is helpful. At times I feel a bit anxious in the mornings after I’ve taken my modafinil.

Can Anyone Tell Me What Causes Narcolepsy? Are We Just Born With It Or Did Something Cause It?

A MyNarcolepsyTeam Member asked a question 💭
Springfield, MO

As a teen I was told I suffer from CFS (Chronic fatigue syndrome), brought on by being anemic and two bouts of mono. At age 62 now, I wonder if it was narcolepsy the whole time. There was no testing for this back then.

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A MyNarcolepsyTeam Member

Auto immune disorder is genetic But there is also triggers if you have the genes in place or lacking

Where Else Do I Go When I Get No Help From Sleep Programs When I Get Is That "everything Is Ok"....no Problem Found ?

A MyNarcolepsyTeam Member asked a question 💭
New York, NY
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A MyNarcolepsyTeam Member

looks great.. expensive...