Top 10 search results for "books about narcolepsy for grown ups and children" in Q&A. To see all results and access other features, sign up for free.

I have been on Modafinil for over a year. My doctor finally sent me to a sleep specialist and I will have my sleep study and mslt in a couple weeks. I never feel fully rested, but there are some days that I can’t go more than 2-3 hours without a nap. I get very drowsy and my eyelids get heavy. On my bad days, this happens every 2-3hrs all day long.

Hello everyone,

My name is Justine Murphy, and I'm reaching out for support for my family during these challenging times. I have narcolepsy with cataplexy, which has left me disabled and unable to work. This means my husband is the only one able to work, and it's been tough to make ends meet. We have three wonderful kids who need food and school clothes, and we're struggling financially

My kids mean the world to me. They are bright, energetic, and full of potential. As a mom, I dream of being… read more

I have been taking adderal for a good 15 years. The highest does and is not helping. I took adderal originally for adhd. But it doesn’t seem to work anymore. Do you have any suggestions?

Im a young man in my 20’s and I'm married I don’t have any yet. Id like some my wife says she definitely wants some but i worry so much about my narcolepsy and how it would limit my ability to take care of them. I wouldnt want to hinder her or my children. Especially financially or just securing their safety. I don't want to put all the responsibility on my wife because my narcolepsy makes my reliability inconsistent. Any response or tips is helpful.

Narcolepsy 2, adhd, addiction but lives in sober living & sober, sees sleep dr, hoarder, raised by her grandparents. Uses excuse not her fault because of her narc. Doesn’t seem to want to change. Any ideas how to make her want a better life?

Why on earth does narcolepsy take so long to diagnose? I've been trying hard to find some sort of logical, rational explanation, some sort of justification, but I can't find it. I know it's not a well-known disease, I know we can't expect people to know there's some sort of neurological issue with lack of orexin and an autoimmune reaction behind our symptoms, but although friends, family, doctors may not know the exact cause of the symptoms, I think they know and can see we are not well and are… read more

I want to know about one of your best days you have had with your narcolepsy. Tell me how you felt, who you were with , everything.

i find that having narcolepsy makes the cpap not worth the anxiety, it does not help me

I've been keeping a sleep journal for a couple of weeks now. The journal includes Fitbit readings (for what they're worth) of sleep cycles. One thing struck me as odd: most of the articles that I have read on sleep cycles mention that people cycle into REM within 90 minutes *on average*, then they become more frequent in the second half of the night. Mine seem to be a bit haywire. I usually fall asleep about 8:05 p.m. and up about 4:30 to 4:45 a.m. Again, for what the readings are worth… read more