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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
365 questions
How Do Beverages With Caffeine Affect Your Narcolepsy?
A MyNarcolepsyTeam Member asked a question 💭
A MyNarcolepsyTeam Member

Not as effective as it use to be. I would drink a few cups of coffee a day (4-6). Back then 15yrs ago it worked to keep me awake. Now its not enough or its not working

posted 19 hours ago
My Body Sometimes Let Me Know When I'm Bout To Suddenly Fall Asleep Can Anyway Else Relate
A MyNarcolepsyTeam Member asked a question 💭
My Doctor Ordered Pharmacogenetic Testing To See How I Genetically Metabolize Medications. Has Anyone Had This Benefit Them?
A MyNarcolepsyTeam Member asked a question 💭
Those Of You Who Have Cateplexy. Have You Taken Venlafaxine And Has It Helped? What Side Effects Have You Expereienced? GeorgeW
A MyNarcolepsyTeam Member asked a question 💭
I Get Sleepy During Day Time And Night Time
A MyNarcolepsyTeam Member asked a question 💭

Have had a wreck driving falling asleep

A MyNarcolepsyTeam Member

I have started to fall asleep plenty of times and don't know how I got from point a to point b. It's scary. Be careful. If possible try to take a short nap before going on a trip.

posted 5 days ago
Anyone Using The Single Dose Medication? Is It Working For You?
A MyNarcolepsyTeam Member asked a question 💭
My Polysomnogram And Mslt Both Showed A Complete Lack Of Delta Wave Sleep... Any Others Here With Same Test Results?
A MyNarcolepsyTeam Member asked a question 💭
A MyNarcolepsyTeam Member

Four minutes of N3? You're LUCKY! My result was literally zero seconds. ;)

posted February 13 (edited)
I Started Taking Sunosi About A Month And A Half Ago And So Far So Good. Is Anyone Else Taking It? What Are Your Results/side Effects?
A MyNarcolepsyTeam Member asked a question 💭
A MyNarcolepsyTeam Member

What does sunosi do for you. Does it make the eds less?

posted 5 days ago
Does Anyone Know If You Can Carry Sodium Oxybate On An Airline?
A MyNarcolepsyTeam Member asked a question 💭
A MyNarcolepsyTeam Member

Yes, but the bigger question is whether it is allowed in another country if you are traveling out of country. I had my doc write a brief letter noting my prescription and dates of travel.

posted January 28
Hi, Did Anyone Take Ambien Regularly For Insomnia And Were Told They Had To Go Off Of It For The Mslt? Or Were You Able To Still Take It?
A MyNarcolepsyTeam Member asked a question 💭
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