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Narcolepsy

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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Provigil

Provigil

what is nuvigil structure

A MyNarcolepsyTeam Member said:

never mind i looked it up thanks

posted 4 days ago

Xyrem To Xywave

Xyrem To Xywave

Has anyone changed from xyrem to xywave? What is your experience with either of them? Both have changed the taste, and what foods I eat, has that happened to you?

A MyNarcolepsyTeam Member said:

I'm now taking Sunosi as well. It is expensive but it is worth it, its the only way I can function.

posted 4 days ago

Armodafinil Not Working Anymore

Armodafinil Not Working Anymore

Anyone ever been on Armodafinil for a few months & then start to notice that your body has no effect to it? Like it you are back to square one before you started taking anything for narcolepsy. Am I the only one?

A MyNarcolepsyTeam Member said:

anxiety, I believe it has the least half-live of benzo's

posted 4 days ago

Looking For Support And Friendship Through This

Looking For Support And Friendship Through This

Am almost 42, live in Huntington WV and am womdering if there is anyone else with narcolepsy looking for someone to talk to for sypport or just a friend to listen IN PERSON. Preferably with small child also. Single mom seeking same for emotional relief

Has Anyone Else Read That Narcolepsy Is Commonly Treated With Stimulants? Ex. Adderall

Has Anyone Else Read That Narcolepsy Is Commonly Treated With Stimulants? Ex. Adderall

I have been struggling with my sleep and staying awake for a long time. My boyfriend of a year (and some change) has tried to help by seeing if taking one of his Adderall pills would help me stay awake. I've found it puts me to sleep right the same as my Xanax does. Another friend suggested I try Vyvanse. I have heard Vyvanse is different but not sure in what ways. I tried a tiny amount on a day where I was struggling to stay consistently awake, and it worked. No side effects, just normal… read more

A MyNarcolepsyTeam Member said:

I use this, it is the only thing that works

posted 11 days ago

Anyone Deal With Or Know About Narcolepsy Going Into Remission?

Anyone Deal With Or Know About Narcolepsy Going Into Remission?

I've had since I was young. I have gone into what seems a hybernation state several times for several months to years at a time since. I'm 56 now. If this has happened to me, why can't remission be figured out so that we can put Narcolepsy in remission always?

Does Anyone Else Take Provigil And Does It Make U Sick Or Does It Go Away After It Gets In System If So How Long Does It Take

Does Anyone Else Take Provigil And Does It Make U Sick Or Does It Go Away After It Gets In System If So How Long Does It Take

A MyNarcolepsyTeam Member said:

I took provigil over ten years ago and I couldn't tried again about two years ago and I can tolerate it BUT I had two break the tablet in half and just take it for about 2 weeks then went to a whole… read more

posted 2 months ago

Do Any Of You Have Bad Automatic Behavior, And How Do You Deal With It ? What Combats It ?

Do Any Of You Have Bad Automatic Behavior, And How Do You Deal With It ? What Combats It ?

Automatic behavior is when your doing something and go into REM for a period ,when you come out, you can’t remember what you did, even though you still keep walking and talking. And no one can tell that no one is home unless you do something really stupid. It can last seconds or several minutes to like an hour. It’s just like sleep walking. It can happen once, or 100 times a day. You think it’s because your memory is bad, but it’s little black outs while you’ve slid into REM. I can’t find much… read more

A MyNarcolepsyTeam Member said:

I had something similar or it was what you are explaining it came at a time in my life when stress was high my sleep schedule was not being followed then the problem in my life was resolved and this… read more

posted 2 months ago
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