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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
398 questions
What Tips Would You Share To Help With Seasonal Allergies?
A MyNarcolepsyTeam Member asked a question πŸ’­
A MyNarcolepsyTeam Member

I would ask your doc. But Benadryl I find sedating. I take Zyrtec instead.

posted 5 days ago
Using Ozempic For Weight Loss, Help The Narcolepsy To ,,
A MyNarcolepsyTeam Member asked a question πŸ’­
I Don't Even Know How It Feels To Be Wake Up, I Get Jealous Of People That Has Energy And Happinesses
A MyNarcolepsyTeam Member asked a question πŸ’­

I thought being sleepy all the time was the way of life, I hate it so bad

A MyNarcolepsyTeam Member

Not to dwell on the negative, but we all truly understand why sleep deprivation is used as a means of torture.

posted April 15
I Am 50 Years Old I Have Narcolepsy + Cataplexy I Can No Longer Do Much Of Anything Anymore Sitting I'm Asleep Has Anyone Got SSi For This
A MyNarcolepsyTeam Member asked a question πŸ’­
A MyNarcolepsyTeam Member

I finally got disability, with the help of an attorney. They denied me multiple times and then they had to do an occupational evaluation. After the evaluation they came up with one job I could do… read more

posted April 16
Has Anyone Been Diagnosed With Fibromyalgia? If So, How Did Your Doctor Diagnose It When The Symptoms Are So Similar To Narcolepsy?
A MyNarcolepsyTeam Member asked a question πŸ’­

Also, what meds do you take for fibromyalgia? Do they work?

A MyNarcolepsyTeam Member

I have fibromyalgia and I take duloxetine

posted April 9
Everyone Have A Great Week 😁
A MyNarcolepsyTeam Member asked a question πŸ’­
A MyNarcolepsyTeam Member

Thanks you too

posted April 1
Advice?
A MyNarcolepsyTeam Member asked a question πŸ’­

My boss called me in for a meeting today because i've been consistantly late. I just cannot get up in the morning. No matter how many alarms I set or how many automated things I set up I sleep through it. The only thing that gets me up is the sheer panic when I realize I overslept. Again. It's affecting my job performance and my self-esteem. I have an appointment with my sleep specialist this thursday but I'm not sure there is anything that can be done. I'm already on medication. I stay awake… read more

A MyNarcolepsyTeam Member

Vyvanse meds during the day has helped me wake up in the mornings more easily , since they are a time release med releasing for 13 hrs

posted April 4
Could You Share Any Dietary Changes And Tips That Have Helped With Narcolepsy?
A MyNarcolepsyTeam Member asked a question πŸ’­
A MyNarcolepsyTeam Member

Only drinking Chinese medicine can improve this disease
I have personally experienced ketogenic diet (about three months) and vegetarianism (two years until now). These two methods can only… read more

posted 18 hours ago
5 Years Old With Narcolepsy Type 1
A MyNarcolepsyTeam Member asked a question πŸ’­

Hello

Does anyone have a child who was diagnosed when they were really young? Wondering abt their medication and overall experience

A MyNarcolepsyTeam Member

I was diagnosed in the early 80s I was 11. I started on Adderall then.

posted March 25
Can A Person Take Narcolepsy Med With Bupenorphine?just Curious.
A MyNarcolepsyTeam Member asked a question πŸ’­
A MyNarcolepsyTeam Member

Yes

posted March 24
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