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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Can Side Effects Of Stimulants Prescribed For Narcolepsy Mimic Symptoms Of ADHD?
A MyNarcolepsyTeam Member asked a question 💭
posted 2 days ago
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Can Narcolepsy In Kids Cause Combative Like Behavior During Sleep?
A MyNarcolepsyTeam Member asked a question 💭

I probably can’t explain this well bec it’s my niece, 11yo. They’ve been trying cpap but finding it difficult because she will fight them at periods in the night. I’m thinking it may be when she is at a particular sleep stage or transition. Anyone experience this as a kid or with their own kids?

posted 3 days ago
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How Do You Ensure You Get Your Medicine On Time Each Month? (CVS Caremark)
A MyNarcolepsyTeam Member asked a question 💭

Three months in a row I have struggled to get my Nuvigil 200mg (60 count) rx. CVS always has it on backorder, and now my new pharmacy took 5 days to get my meds. I work full time, so I make a lot of mistakes when I am unmedicated.
Anyone with CVS caremark? What is a less stressful way to get your meds on time?
Idk if it's my state... PA only allows 2 days before the rx is out, and no auto refills. I can't keep going through this, and I know I'm not alone. :(

posted 4 days ago
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A MyNarcolepsyTeam Member

Almost every time I request a refill, no matter what my Doctor prescribes, I seem to have problems!! That in itself is exhausting!

posted 2 days ago
What Is Cataplexy For You? How Correct Is The Definition We've Been Given?
A MyNarcolepsyTeam Member asked a question 💭

By definition, cataplexy is "a medical condition in which strong emotion or laughter causes a person to suffer sudden physical collapse though remaining conscious" but as we all know, there's so much more to it. So what is cataplexy for you?

posted March 22
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A MyNarcolepsyTeam Member

There's two kinds of narcolepsy, one with cataplexy and one without. But I've seen some people say that they had something different than the textbook definition of cataplexy

posted 7 days ago (edited)
What Specialist Will I Need To See To Visit In Order To Figure Out If I Have Narcolepsy.
A MyNarcolepsyTeam Member asked a question 💭

I’ve have sleep apnea yet after 21 years of dealing with sleepiness I’m getting frustrated on which sleep disorder is happening. Starting to have a paralysis upon awakining each morning k

posted March 22
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A MyNarcolepsyTeam Member

Sleep Specialists ?

posted March 23
What Are New Life Hacks You've Learned To Better Manage Your Life With Narcolepsy?
A MyNarcolepsyTeam Member asked a question 💭
posted March 20
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A MyNarcolepsyTeam Member

Hi and thanks for posting some of your things that you have created. I think that as you create more things. The energy and excitement could be carried over when it comes to avoiding being tired and… read more

posted 5 days ago
How Do Y’all Wake Up In The Morning?
A MyNarcolepsyTeam Member asked a question 💭

I personally can remain conscious with armodafinil, but it’s waking up that is impossible for me and constantly threatened my employment before I started living with my parents and working from home. I take armodafinil around the first alarm (I usually don’t remember taking it - I know I’ve taken it because the pill laid out is gone.) I have to rotate through different alarms because I’ll habituate: shock watch that shocks me until I do jumping jacks, sonic boom alarm that shakes the bed and… read more

posted March 19
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A MyNarcolepsyTeam Member

Very slowly, by then it's well after noon

posted 2 days ago
Anybody Have Any Tips And Tricks To Keep A Student Who I Believe To Have Narcolepsy (undiagnosed) Awake During Class?
A MyNarcolepsyTeam Member asked a question 💭

I am currently student teaching in an elementary special education classroom. I was diagnosed with severe Narcolepsy and Cataplexy in 2016. I have a student in the class who based on my experience (not officially diagnosed) who has Narcolepsy.

Here's a little background information.. She is falling asleep in class and can be asleep in seconds and not wake up when you try to wake her up. When we bring this up to mom she claims that she wakes up in the middle of the night, steals somebody's… read more

posted March 15
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A MyNarcolepsyTeam Member

Get her a standing desk Direct questions toward her to keep her “on her toes”.

posted 7 days ago
Wakix?
A MyNarcolepsyTeam Member asked a question 💭

Has anyone been able to get on Wakix? My doctor has spent hours and hours per patient attempting to get them on Wakix with no success! What is the deal?

posted March 12
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A MyNarcolepsyTeam Member

There’s now a non generic Xyrem, fyi. I pay only $30/month copay for it. I just started it two days ago. I have high hopes for being able to drive more than 20 minutes once I’m up to full dose.

posted 7 days ago
Has Anyone Been Diagnosed With Borderline Personality And Narcolepsy 2? What Drugs Are You On?
A MyNarcolepsyTeam Member asked a question 💭
posted March 11
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A MyNarcolepsyTeam Member

That’s interesting. I was originally ordered Ritalin 30mg before breakfast & before lunch. I weaned down to 20 mg but I’m still pretty sleepy. A small dose in the afternoon would make it safer driving… read more

posted March 19
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