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Narcolepsy

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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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How Do You Manage Your Narcolepsy At Work?

How Do You Manage Your Narcolepsy At Work?

A MyNarcolepsyTeam Member said:

My sleep patterns have to surround my hours of work. That is the only way I can stay awake. I provide therapy to people so I can't fall asleep!!

posted 3 days ago

What's The Worst Situation You Fell Asleep In?

What's The Worst Situation You Fell Asleep In?

A MyNarcolepsyTeam Member said:

Driving and out eating. I was trying to stop and my feet would not move from the gas pedal, but my brain kept saying move your feet, and I was out eating with co-workers when I was working, and when i… read more

posted 16 days ago

What Do You Wish Your Doctor Better Understood About You?

What Do You Wish Your Doctor Better Understood About You?

A MyNarcolepsyTeam Member said:

What starts as the destruction of our sleep metronome often leads to the destruction of life as we knew it, the death 💀 of our original life plan. That’s grief!

posted 18 days ago

How Many Injuries Have You Had? And Most Bizarre Behaviors

How Many Injuries Have You Had? And Most Bizarre Behaviors

I always thought I had something wrong with my brain based on my bizarre accidental injuries, guess narcolepsy was always the cause.

Here's my list
1. Forgot which side of the road to drive on
2. Burned myself many times with clothing iron, flat iron.
3. Pinched finger badly while putting umbrella down
4. Slammed hand in folding table
5. Forgot to put car in Park multiple times
6. Broke my finger and split it down to the bone with electric hedger (finger was in half at the top)

Bizarre sleep… read more

A MyNarcolepsyTeam Member said:

What I do that is strange is talk about a story I make up in my mind. I believe it is real and I get about halfway through it and can't continue because it isn't real. Also, I keep notes on people… read more

posted 1 day ago

Has Anyone Else Used Illegal Stimulants And Then Discovered Why Later Life When You Were Diagnosed With Nargosy

Has Anyone Else Used Illegal Stimulants And Then Discovered Why Later Life When You Were Diagnosed With Nargosy

Don't judge me. This coming September I will have 4 years clean and sober. Since I was 25 and I have abused methamphetamine. And it didn't really get me high it just allowed me to function and do things that everyone else was doing my age. Has anyone else found that they were literally self-medicating with stimulants?

A MyNarcolepsyTeam Member said:

Try over the counter sudafed as directed. It will perk you up for many hours. Just take it in the morning so you can at least try to get some sleep,

posted 30 days ago

Type 2 Narcolepsy

Type 2 Narcolepsy

Hi everyone 👋🏻 Wondering if anyone else here has type 2 narc? (Narcolepsy without cataplexy) I’ve tried researching it but even less is known about type 2 than 1. Just going through the motions..

A MyNarcolepsyTeam Member said:

I was originally diagnosed with narcolepsy without cataplexy. But I have had a few episodes that include cataplexy so I don't know

posted 26 days ago

Would Anyone Be Interested

Would Anyone Be Interested

Research opportunity for Narcolepsy Type 1 with Cataplexy - male patients. This is a 30-min online survey, and the compensation is $45.

Please sign up at the link below to receive an email invite to the survey.

https://rarepatientvoice.com/MNTutherow/

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