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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
448 questions

What Are Your Top Tips For Dealing With Narcolepsy In The Heat?

A MyNarcolepsyTeam Member asked a question đź’­
A MyNarcolepsyTeam Member

Hmm- processed food. How do you avoid that in America? I have a child who buys only organic, non-GMO, and gluten-free products.

posted 12 hours ago

Does Narcolepsy And Lupus Go Hand In Hand

A MyNarcolepsyTeam Member asked a question đź’­

I have both and immune disorders along with allergies and intolerance to foods.

Anyone Know What The Social Security Disability People Think About Narcolepsy.

A MyNarcolepsyTeam Member asked a question đź’­

How Do You Exercise When Your Meds Aren't Working And You Can Barely Get Out Of Bed- LITERALLY?

A MyNarcolepsyTeam Member asked a question đź’­
A MyNarcolepsyTeam Member

LORD HELP US !!!
I UNDERSTAND you completely..
And I have not gotten that one figured out yet …
I FEEL the same way ..

posted 14 hours ago

Any Providers On Here Who Treat The Worst “extremely Severe” Cases Of N1 With Neurology, Sleep Disorders, OSA (Comorbid Diagnosis) Specialty

A MyNarcolepsyTeam Member asked a question đź’­

I experience all N1 & cataplexy symptoms & have OSA.

Adderall

A MyNarcolepsyTeam Member asked a question đź’­

My doctor won't give me adderall 30. MG. 1 tablet. 3. Times a day. I was taking it since 2017. Prescribed. By the doctor that diagnosed. Me. With narcolepsy. Then. They changed Dr's. On me. What do I do?

A MyNarcolepsyTeam Member

I am sorry but for three years my son has been a genie pig docs having him trying everything else but what worked for him - which caused him to lose of his log and where he was living along w all his… read more

posted July 17

Could Someone Suggest A Provider In The Northern NJ Area Who Treats Narcolepsy?

A MyNarcolepsyTeam Member asked a question đź’­

I suffered a TBI in 2013 and seemed to have memory issues, and mild cognitive impairment since. I had been a Microbiologist for 25+ years in a hospital. Most will say I don’t appear to be disabled and quite intelligent. But I can’t even do math now and I have multiple “to do lists” I write, re-write daily, I forget medications and sometimes to eat. I seem to struggle with sense of time. I can be on my phone texting for hours and wonder why my hands hurt, I think I’ve been on the phone a much… read more

A MyNarcolepsyTeam Member

I’m going through the same situation with providers and a Comoros diagnosis with being beyond the scope of the spectrum as the “worst case seen in narcolepsy with all cataplexy.” In Indianapolis area… read more

posted July 10

Why Does It Seem The Meds They Have You On Work Sometimes Better Then Other Times?

A MyNarcolepsyTeam Member asked a question đź’­
A MyNarcolepsyTeam Member

My condition seems to be independently quirky as well. Also, I have to take a break from meds once in awhile & just sleep. Seems the meds cause me to use up whatever it is that my brain has in short… read more

posted July 16

Anyone Find Anything To Help Other Than Prescription Medication?

A MyNarcolepsyTeam Member asked a question đź’­
A MyNarcolepsyTeam Member

Definitely scheduling naps like JCTheNodsy said. I have other issues that require me to also be careful about food intake (amount and time) otherwise I get insanely tired so maybe check if you get… read more

posted July 14

Narcolepsy. And Ptsd. Does Anybody Have This Combination?

A MyNarcolepsyTeam Member asked a question đź’­
A MyNarcolepsyTeam Member

Yes I have both…..

posted 13 hours ago
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