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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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What Has Your Doctor Suggested When No Medication Regimen Is Working?
A MyNarcolepsyTeam Member asked a question 💭

The only common recommended medication I have not tried is Wakix. Currently taking high doses of sunosi, nuvigil, and vyvanse daily. Seems like all the regimens work for about 2 weeks then back to feeling like I did prior to diagnosis.

posted 6 hours ago
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Is It Weird That I Can Still Feel Sleepy (and Sleep) On 60mg Of Vyvanse? Anyone Else?
A MyNarcolepsyTeam Member asked a question 💭
posted 3 days ago
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A MyNarcolepsyTeam Member

I can take 60 mg. of Adderall and actually FALL ASLEEP on some days. So frustrating.

posted 3 days ago
How Long Did It Take You To Finally Get Your Narcolepsy Diagnosis? Were You Diagnosed With Any Other Sleep Disorders First?
A MyNarcolepsyTeam Member asked a question 💭
posted 6 days ago
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A MyNarcolepsyTeam Member

Almost 20 years. COVID triggered it into super powers which got the Drs attention more.

posted 5 days ago
What Narcolepsy Symptoms Do You Have That You Didn’t Expect?
A MyNarcolepsyTeam Member asked a question 💭
posted 6 days ago
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A MyNarcolepsyTeam Member

to judith2. dexedrine span 15mg. it is a life saver. it allowed me to have a 40 hour a week job

posted 1 day ago
Hey, Does Anyone On Here Receive PIP Payment For Help?
A MyNarcolepsyTeam Member asked a question 💭

So I have applied for PIP three times now, once on my own, once with help from Narcolepsy UK and this last time with help from a disability service local to myself. I struggle to work full time, I've had to give up a second job because it was dangerous for me to work. And this current job I've reduced my hours. Like most of us I am mobile and can do things but struggle, I can drive with my meds but struggle, I feel we fall into a crack in-between being well and disabled to a lot of people. I am… read more

posted September 21
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Anyone Hear Of Or On Wakix?
A MyNarcolepsyTeam Member asked a question 💭

On a recent visit my Dr. added a new drug in addition to 30mg Ritalin 2xday because I'm so sleepy. It's called Wakix. Does anyone in this group take Wakix? If so, any problems with it? What has your experience been ? Sleepygirl4

posted September 20
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Do A Lot Of People Fall Asleep At Breakfast, With Coffee Cup In Hand And End Up Nodding Out And The Wearing The Coffee?
A MyNarcolepsyTeam Member asked a question 💭
posted September 19
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A MyNarcolepsyTeam Member

I used to fall asleep with a cup of coffee and cigarettes in my hand! There they go on the floor! Lived with my mom for a few years until she passed! My mom used to wake me up before I could make a… read more

posted 20 hours ago
So After Multiple Cataplexy Spells In A Roll Does Anyone Ever Get Headaches After Pr Walk Around With Your Head Feeling Numb?
A MyNarcolepsyTeam Member asked a question 💭
posted September 12
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A MyNarcolepsyTeam Member

Confusion is a bit hard to get used to with Cataplexy. It takes a bit for me to realize I am going through Cataplexy. Normally I realize I am having issues and Now I have a plan to help myself. I… read more

posted September 14
Baltimore Doctors?
A MyNarcolepsyTeam Member asked a question 💭

Does anyone know of a good sleep medicine doctor near Baltimore. I have a great doctor, but it’s an 80 min drive from me. Baltimore would be so much closer.

posted September 3
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I Have Soooo Many Questions.
A MyNarcolepsyTeam Member asked a question 💭
posted September 2
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