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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Has Anyone Tried Blue Light Therapy Glasses?

Has Anyone Tried Blue Light Therapy Glasses?

I'm going to purchase luminette 3 glasses to help with my EDS.

posted 1 day ago
A MyNarcolepsyTeam Member

Thanks Brian. Glad you were finally diagnosed correctly. Yes, a game changer for sure!

posted 7 hours ago

Has Anybody Had Better Results With WAKIX Vs. Combination Of SUNOSI And XYWAV?

Has Anybody Had Better Results With WAKIX Vs. Combination Of SUNOSI And XYWAV?

I am currently taking SUNOSI during the day and tried to switch to WAKIX because of my cataplexy and sleep paralysis. My insurance would not approve WAKIX until I tried XYWAV so I started XYWAV. I find it almost ridiculous that XYWAV is twice nightly dosing! My anxiety is worse and affecting my overall sleep because half the time I can't get that second dose accomplished between 1-2 am.

posted 2 days ago
A MyNarcolepsyTeam Member

I know the feeling but xywav changed my life completely!! That being said I created an automated system to make sure I took my second dose, basically it starts the timer as soon as I take the first… read more

posted 2 days ago

Why Does Negative Air Ion Therapy Works To Some Degree For Epileptics

Why Does Negative Air Ion Therapy Works To Some Degree For Epileptics

it has some influence in everybody you only have to go to a rough sea or waterfall to feel it so why can it over ride the sleep urge of epileptics which has an entirely different orign

posted 4 days ago

What Is "John 3.16" All About ?

What Is "John 3.16" All About ?

posted November 30
A MyNarcolepsyTeam Member

"For God So loved The World That He Gave His Only Begotten Son,(Jesus) That Whosoever Believeth In Him Should Not Perish But Have Everlasting Life " I'm Just Praying "

posted November 30

Does Anyone On The Team Noticed If You Are Active All Day No Day Nap You Tend To Have Less Insomnia At Bedtime.

Does Anyone On The Team Noticed If You Are Active All Day No Day Nap You Tend To Have Less Insomnia At Bedtime.

If I'm àctive and don't take a nap 💤 I tend sleep 😴 sound no insomnia present.

posted November 26
A MyNarcolepsyTeam Member

@A MyNarcolepsyTeam Member
Not saying it's true, but this happens to me at times. Just wondering has anyone had the same effect 🤔

posted November 28

How Do You Thank Your Family And Friends For Their Support?

How Do You Thank Your Family And Friends For Their Support?

posted November 23
A MyNarcolepsyTeam Member

So is that why I drop things so often? I also have arthritis in my fingers, as well. I now buy my drinking glasses at the thrift store since I've broken so many.

posted 2 days ago

Has Perimenopause Or Menopause Affected Your Narcolepsy Symptoms?

Has Perimenopause Or Menopause Affected Your Narcolepsy Symptoms?

I was recently diagnosed with Type 2 Narcolepsy. I've also just started perimenopause, which from what I've read can also disrupt your sleep. I'm curious if others have noticed a change in their narcolepsy symptoms once they started to go through peri-menopause or menopause, and how they dealt with it.

posted November 21
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