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Does Anyone Else Deal With People Who Don't Believe Narcolepsy Is A Real Disease?

Does Anyone Else Deal With People Who Don't Believe Narcolepsy Is A Real Disease?

I have been diagnosed for almost 3 years now and I still have family members that believe I'm just lazy. On my bad days I can sleep 19 hours a day or more. If I'm cold I go into hibernation mode and can't wake up til I warm up and some of my family act like I chose to sleep. Luckily my husband isn't like that. If y'all had similar experience how did u deal with it?

A MyNarcolepsyTeam Member said:

These are also the type of people who believe chem trails and vaccines cause autism. If they don't believe actual scientific evidence, let them be willfully ignorant. You and your doctor and people who really matter know that its a real disorder and that's all that matters.

posted about 2 years ago
A MyNarcolepsyTeam Member said:

I was working for a company that had a point system for attendance and if you came in even one minute late you were given a point. At a certain number of points you were terminated. I was getting points every day and my boss was coming at me with policy books telling me if I was late three more times he'd have to fire me. I explained why I couldn't drive when I get stuck in traffic or anything that made me feel i was going to be late and my anxiety would kick in causing cataplexy which was only getting worse because of this attendance policy and his response was to tell me that I needed to call him when this happened and why didn't you tell me this before. I had to explain that I was not one to use my issue as an excuse and tha last time I told my employer they figured out a way to get rid of me after working for them almost 30 years. He was the first to actually attempt to understand but I have family members that tell me I'm faking it. I just tell them to Google it and if I am faking it I must be a master of manipulation because I can change my brainwaves and force myself to have a sleep latency result of 90 seconds. Then I tell them I don't need their opinions because I have the opinion of the expert and their opinion is just like something else we all have. ๐Ÿ™‚

posted almost 2 years ago
A MyNarcolepsyTeam Member said:

Yes my husband doesn't believe l have it .Even do l was diagnosed with narcolepsy he thinks l am just resting and being lazy

posted over 1 year ago
A MyNarcolepsyTeam Member said:

That's terrible Kat- why would you lie about that. That counselor was a dah dah

posted almost 2 years ago
A MyNarcolepsyTeam Member said:

Yes I've heard people say it's fake or an escape, then I show them the videos friends have taken of me while episoding and show them scars or broken bones and bumps bruises from just flat falling. My parasomnia is horrible.

posted almost 2 years ago
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