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Do stimulants help?

A MyNarcolepsyTeam Member asked a question 💭
La Mesa, CA

When I was first diagnosed beginning of high school, my doctor had me try a couple different treatments. One of them was Ritalin, but I was wary of pills and didn't want to go that route. College has really been testing my limits, and I'm starting to fall behind. Do stimulants help any of you guys? Which kinds help the most? Do side effects outweigh the pros? Thank you!

June 1, 2020
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Answer Summary

Many community members responded to the question about whether stimulants help with narcolepsy, and the overall consensus was a strong yes,... Read more

Many community members responded to the question about whether stimulants help with narcolepsy, and the overall consensus was a strong yes, though results vary by person. Several members shared their experiences with medications like Adderall, Modafinil, Armodafinil, Provigil, Dexedrine, and Sunosi, noting that finding the right med often takes trial and error, and keeping a personal log of what works can be helpful. A recurring theme was that side effects like high blood pressure, heart issues, and sleep disruption are real concerns, and many members combine medication with naps, caffeine, and movement breaks to manage daily life.

A MyNarcolepsyTeam Member

I have had to be on nuvigil and then modafinel both of which did not work at full dose then I was put on Adderall am now taking full dose 30mg 2 times a day and that helps but not fully and now I'm on 150 mg sonosi and with the Adderall it helps but I believe because of past illigal stimulant use I have a high tolerance so that's why it stops working so quickly for me also the modafinil leaves me with the same kind of face "tweeks" that methamphetamine does so s
When.on it everyone thought I was using again.

August 25, 2020
A MyNarcolepsyTeam Member

Yes it works for me. But sometimes the
nacrolepsy wins

March 25, 2021
A MyNarcolepsyTeam Member

I take stimulants for adhd Adderall to be specific. But I'm on the highest disse of it and I still suffer from ED'S and cataplexy

September 2, 2020
A MyNarcolepsyTeam Member

Hi, I’m new here but unfortunately not to Narcolepsy! I was diagnosed about 15-18years ago after I became a Psg technician(Polysomnogram/sleep) working in sleep centers. I work dialysis now FT but still do sleep studies for sleep disorder breathing and MSLT for narcolepsy. I was started on Provigil from the beginning, from 100mg to the max which lasted about 4 years then I started on Ritalin 10mg until I hit max at 60mg. This worked for a few years, and thankfully Nuvigil came out and so for a while the Nuvigil 1 1/2 q day, 20mg Ritalin TID and in past couple years have added 150mg Wellbutrin. This works the best (geez it should) but sadly I can still go to sleep any time anywhere. I do have a crazy work schedule that exacerbates my symptoms oh and I had hysterectomy April 2019 and my hormones hit the dirt as well as there me into menopause, not that I wasn’t on my way anyhow so now I also have Biomedical hormone pellets implanted under the skin every 3 months unless booster is needed I’m between. So I should feel like a million bucks and be able to function pretty well awake but sadly I could still sleep the day away and it sucks!

August 11, 2020
A MyNarcolepsyTeam Member

that is what i take and it changed my life

May 25

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