The university by me charges $6000 for both the nighttime and daytime sleep study. I am still paying off my neurologist appointment which was over $1000 and just reaffirmed my ADHD and checked my reflexes... 20 min, in and out. Very disappointing.
I needed the sleep study for court. I am now looking at outside areas (I live in Chapel Hill NC near Raleigh) that might offer sliding scale.
I do not want to go on disability by any means. That would hurt my court case to get my daughter home. In… read more
I took the abuse of my doctors and filled FMLA. What about the Disabilities Act? Possibly they can help as this has becomes more recognized.
My doctor has repeatedly suggested I apply for disability, but I need the medical insurance from my job teaching. I send articles to friends and family members from the National Sleep Organizations, the FDA and universities and hospitals like Harvard School of Medicine or th Walter Reed Army Hospital. I demand they read it before I’ll communicate with them again. You don’t need those that say you’re their friend or a family member if they aren’t willing to read such high esteemed research. I would tell them “shame on you”. This disorder has numerous side effects on your physical and mental health, actually causing additional auto-immune disorders.
Do you qualify for Legal Aid? I’d pursue all free advocacy agencies including SSI and the American Disabilities act and agency.
I feel like many did not really read what the poster was saying. Each state is different in medicaid. The state runs the program. Not fed government even the it is federal program. NC did not expand it. She may have narcolepsy but until she is diagnosed she does not have it at least on paper. She cannot afford testing beyond what she already has not been able to pay. Is there a large university you could call and ask to speak to financial aid office and fill out forms for possibly an internal program? It may be non existent but sometimes there are. It may not cover this though. If you have not tried that maybe try. I do you have cataplexy?
Just a note Guys, let's support the Ladies, who like many of Us, struggle with Narcolepsy. We could All use a break. Relax (not pass out) and take it easy. Ladies, the
road is paved in both directions.
We're all in this together.
I know exactly how you feel. I cannot afford the sleep test either and my ex husband accuses me of similar things as well. No one understands. I’m sorry you are going through this.
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