Have had a diagnosis of narcolepsy with cataplexy for about 10 years. While sleep was always important to me, I never knew it was narcolepsy until I started collapsing at work. I was embarrassed at what was happening and withdrew from life to continue to hide it. I did my research and suspected cataplexy. A couple of doctor visits later it was confirmed. What to do about it? Doctor prescribed Xyrem at night. Took some getting used to, but it helps with sleep. Crazy, a narcoleptic needs… read more
Have u talked to the people at wakix for you? I qualified for a year free
I take wakix...i weaned off of adderall xr. Wakix is doing ok i guess...struggling some without the adderall. Very hard to get up. Wakix is not a stimulant. It increases hystimine which they say those w narcolepsy lack enough of.
My cataplexy is so severe I had to go on disability. I'm currently on Medicare and not eligible for their programs. I do not respond to stimulants so Wakix sounds like a miracle drug! I looked at paying for it, but in no way can I afford it. I'm taking Venlafaxine for the symptoms but it creates other problems. I want off it!
So, you took Wakix for a year? Did it help? Were there side effects? What happened after your year was up?
I'm trying to get to try Wakix, but my insurance won't cover it. I certainly can't afford $14,000 a month. How do people afford it.
I'm on Medicare and they do not allow reduced costs for the drug.
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