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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Narcolepsy And Disability

Narcolepsy And Disability

I have narcolepsy. Which explains so very much now. Alot of things make sense. I won't get into my whole sappy life, so here goes my question
I have multiple diagnoses
2 open heart surgeries for mitral valve replacement. Uncontrolled diabetes Ii, HBP, cholesterol, CHF, Rheumatic Heart Disease, Fibormylgia, back pain, Gastrointestinal issues, marjor depression, anxiety, PTSD....and newly diagnosed Narcolepsy. What are my chances for getting approved for disability??? I'm worn out… read more

A MyNarcolepsyTeam Member said:

You can still work while applying. My husband was recently approved. My advice, the first thing you need to do is get a lawyer!! It will take time to be approved, and you will almost likely be denied the first time, but you appeal and when/if you get approved, you get back pay from the initial file date. You can actually still work after you are approved, it just has to be under a certain amount of hours. make sure you talk with your doctor(s) about it and get them on board and keep good records. You can message me through FB or here(not sure) if you want to ask anymore questions. I did a lot of research while we waited, but I wish I would have known to get a lawyer first! You never have to pay them, the disability will once you get approved. Btw my last name on fb is Barnes

posted about 1 year ago
A MyNarcolepsyTeam Member said:

Thanks for the information...ive written down your information and would love to reach out to you. Thank you so much for offering...I am so overwhelmed by all the things I have to work on, so to have u available...it very nice of you

posted about 1 year ago
A MyNarcolepsyTeam Member said:

I disagree with the advice about getting an attorney and I used to work for disability attorney. I hired one for my disability case that I'm currently fighting and they do a damn thing for me. I knew I was denied before they did. I filed my own appeals. They were very very lazy. Right now I'm at the stage of the appeallate judge.

posted 4 months ago
A MyNarcolepsyTeam Member said:

I was diagnosed with Fibromyalgia and sleep disorder back in 2008 and Dr would not let me go back to work because I couldn't stay awake. I filed for disability and drew on my SS till I was approved for disability in 2009. I wasn't going to be able to even go for my hearing about my disability so my lawyer talk for me and I was approved just mainly on the Fibromyalgia. Hope this helped some....just get a good disability lawyer and you shouldn't have any problems. I didn't. God Bless

posted 5 months ago
A MyNarcolepsyTeam Member said:

Get eating healthy..Kick the junk to the side..All your conditions can improve...Dr Amen on line His wife has nutrition info for the brain.
Good luck and find substituted for junk and do it because you want to be healthy..Do not kick yourself if you eat bad one day ..just get back to healthy stuff

Good fortitude!00

posted 11 months ago
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