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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Cataplexy

Cataplexy

Is there anyone who has experienced cataplexy on a daily/regular basis? & If so what exactly do you experience during an attack? Was anyone misdiagnosed with Pots or epilepsy?

A MyNarcolepsyTeam Member said:

I take meds for cataplexy. On a daily basis I experience slack face muscles..especially around my eyes...any emotion makes my face muscles just relax..mostly on my right side. My eyelids are the worst. Also light sensitive. I also just "melt" if I have an onset of intense emotion. Fall to the ground. Weak leg muscles while walking..etc. I started taking venlafexine and the difference is incredible!! My cataplexy is so bad..its impossible to function without the medication.

posted 4 months ago
A MyNarcolepsyTeam Member said:

That's exactly what I feel it is kind of hard to describe. Yeah its a buzzing electrical feeling for sure and yeah I mostly feel it in the back of my head. That is definitely Cataplexy I started having Cataplexy symptoms before any Narcolepsy symptom. It started when I used to laugh really hard.

posted 5 months ago
A MyNarcolepsyTeam Member said:

I have experience Cataplexy and its a weird feeling. when you laugh hard you really cant keep your head straight or your eyes open its like the muscles of your face cant support your head. Its weird and then my body feels weak like it will collapse if I dont stop laughing, I get weak at the knees. When I used to get really stressed, angry or have crying spells I used to feel like an electrical feeling in my brain as I walked or even just standing, A bit light headed but it was like an electrical pulse in my brain that would make me feel dizzy. Prozac is great for cataplexy, I now can laugh and not feel that.

posted 5 months ago
A MyNarcolepsyTeam Member said:

Staring spells where I don’t remember anything or going to stand up and just go to my knees

posted 6 months ago
A MyNarcolepsyTeam Member said:

Catalepsy..I never experienced anything except feeling weak...Don't fight it.Relax and stay calm..So easy said!

posted 5 months ago
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