Quick Links
About MyNarcolepsyTeam
Powered By
I have recently been diagnosed with narcolepsy without cataplexy. I'm on Adderall 30 mg 3x daily. I've noticed if I don't get a good 10-12 hours of sleep, my Adderall won't work as well. I still have severe brain fog, embarrassingly amounts! I have nightmares so realistic I have to go check on my family. My doctor said he doesn't want me on either med typical for narcolepsy as it can cause Steven's Johnson syndrome. What can help with this? Medicine or otherwise. Thank you
Miranda Dodd
… read more
I had brain fog and found nutrient ..anagamic...a sublingual worked miracles..get oxygen to your brain...Nutrients are the big thing as narc. is a deficiency...The nitemares are like alcohol d- ts Heal your body with nutrients .check...sugar and alcohol are brain destroyers..Hang in there...I have been thru the worst for 60 some years..Cleanse your body..eat healthy..cut out junk and symptoms will lessen..That's what I experienced!
I'm guessing an allergic reaction to certain meds. Only certain meds can cause it. It starts off as flu like symptoms and rash soon thereafter, followed by blisters. It is treatable though.
What's Steven's Johnsons syndrome?
He didn't say any specific names but I had asked if there were any drugs specifically for narcolepsy. He said yes but they can cause Steven's Johnson syndrome and so he wanted to stay away from them.
What meds cause Steven's Johnson Syndrome?
Continue with Facebook
Sign up with your email
Your privacy is our priority. By continuing, you accept our
Terms of use, and our
Health Data and
Privacy policies.
