Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
All Resources Treatments A-Z Personal Assistant What is This Site Help Center Crisis
Powered By
Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Used A Health Tracker To Monitor Narcolepsy Symptoms?

A MyNarcolepsyTeam Member asked a question 💭
Cincinnati, OH

I’m thinking of buying a health tracker to monitor my narcolepsy symptoms, but am not sure if they work for people with narcolepsy. I had been looking specifically at Muse, Oura, and FitBit. Has anyone used any of these successfully?

January 12, 2022
 · 
Reactions

Answer Summary

Members shared mixed experiences using health trackers like Fitbit and Samsung S3 to monitor narcolepsy symptoms, with most finding them... Read more

Members shared mixed experiences using health trackers like Fitbit and Samsung S3 to monitor narcolepsy symptoms, with most finding them helpful primarily for tracking sleep schedules and identifying patterns in sleep stages rather than managing specific narcolepsy symptoms like daytime sleepiness or hallucinations. Several members described using trackers to monitor heart rate when switching medications, correlate symptoms with diet and daily activities through detailed Excel logs, and gain insight into deep sleep and awake time, with one member reporting success by combining CPAP therapy adjustments with strategic medication timing. A recurring theme was the importance of self-advocacy and experimentation when doctors offer limited guidance, with members emphasizing that tracking data and making lifestyle changes like anti-inflammatory diets and improved sleep hygiene can empower individuals to take control of their health even when traditional medical advice falls short.

A MyNarcolepsyTeam Member

I have a fitbit but it doesn't really help much in tracking narcolepsy symptoms unless you're just looking for more insight into your sleep every night. I mostly use it to keep me on a stricter sleep schedule

January 13, 2022
A MyNarcolepsyTeam Member

All the things do is prove to me that i have sleep past regularly daily amounts of sleeping in a day (for example 8 hrs is normal i sleep upto 15 hours

February 1, 2022
A MyNarcolepsyTeam Member

I have a watch that monitors my sleep, oxygen levels, sugar levels, temperature and my blood pressure! Love this! I don’t have a Cpap anymore as the company took it away! I missed some nights wearing it as when I have a migraine, it hurts to wear my mask! So now I have to go back to my sleep doctor, have the test again and find another company to give me another Cpap! Crazy!

October 18, 2023
A MyNarcolepsyTeam Member

I never go a deep sleep! I haven’t responded for awhile! I used a Cpap! They give a new one and fixed it so I get more air! I now do deep sleep most of the night now! I also changed how I take my meds! Most of my meds make you sleepy! So I take two meds that make you sleepy and the rest I take at night! It sure has made a difference in how much awake I am during the day! But I still have to take a nap!!

April 14, 2022 (edited)
A MyNarcolepsyTeam Member

Your welcome hun glad i could give you advice about what might be a touch of class with measurements

February 22, 2022

Related content

View All

I Keep My Condition Confidential At Work, But Sometimes Experience Symptoms/gossip. How To Deal? I Don't Like To Discuss It With Coworkers.

A MyNarcolepsyTeam Member asked a question 💭
November 28, 2025

What Are Other Disorders That Can Result From Having Narcolepsy? I Know At One Time They Had Diagnosed Me With Bipolar Disorder.

A MyNarcolepsyTeam Member asked a question 💭
Elkhart, IN
November 26, 2025

Are There Any In-person Support Groups For Adults With Narcolepsy In The Albany, NY Area?

A MyNarcolepsyTeam Member asked a question 💭
Mechanicville, NY
March 26

Symptoms of Narcolepsy
How Narcolepsy Can Affect Your Mental Health
How To Identify and Manage Narcolepsy Symptoms in Children
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In