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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Do You Manage Your Narcolepsy At Work?

How Do You Manage Your Narcolepsy At Work?

posted 5 months ago
A MyNarcolepsyTeam Member said:

One day at a time. I have been fired numerous times and now I don't give it a second thought. I don't need the added stress. I work and then if I am tired, I take a break. If I don't feel comfortable driving to a customer, I reschedule. I am sick and tired (no pun intended) of making excuses so now I don't. I am a good worker and if that is not enough, I will find something else.

posted 20 days ago
A MyNarcolepsyTeam Member said:

I started Keto diet! It is supposed to give you more energy! We will see what happens! I hope it does!

posted 3 months ago
A MyNarcolepsyTeam Member said:

I’ll be honest. I couldn’t do a job where I sat down at a computer all day. I would be fired in 48 hrs.

posted 5 months ago
A MyNarcolepsyTeam Member said:

I worked fulltime at home due to Covid-19 the first two years after I was diagnosed so I was able to take naps when needed. I am transitioning back into the office at least part time. I spoke with HR and my manager about my need for naps during the day. I have the paperwork to fill out for workplace accommodations through ADA. I am struggling with filling it in. The need for naps is easy however I am not sure how to explain all the other issues. Sometimes a 15-20 minute nap needs to be 2 hours or my alarm goes off and I wake up/fall asleep into REM/wake up/ and the cycle continues for an hour. I am then going to be late for work. Other times I am awake, but I know I should not drive. My husband can usually drive me but may not be able to all the time. There are so many little things that I don't know how to include. I am going to speak with an HR specialist this week to discuss how to address this. I am extremely fortunate to work for an organization that truly values employees, lives and breathes a culture of safety and will work with me.

posted 3 months ago
A MyNarcolepsyTeam Member said:

I used energy gum. It's the same as 1 cup of coffee. On bad days I eat 5 at a time. On good days I go through 3-5 a day. It doesn't taste great and you will want water because it has almost no sugar but it works. I ussually take it as I'm crashing. I also do coffee. I drive 300-500 miles a day and work 13 to 18 hour days. The sugar your taking in will make you sleepy and too much coffee is hard on the stomach.

posted 4 months ago
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