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How Do You Manage Your Narcolepsy At Work?

A MyNarcolepsyTeam Member asked a question 💭
San Francisco, CA
May 13, 2022
 · 
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Answer Summary

Members shared diverse strategies for managing narcolepsy at work, with many emphasizing the importance of structuring their job and schedule... Read more

Members shared diverse strategies for managing narcolepsy at work, with many emphasizing the importance of structuring their job and schedule around their condition, whether that meant working night shifts, choosing active roles like delivery driving, or working from home with flexible nap breaks. Several members described relying heavily on caffeine, energy gum, Adderall, or medications like Vyvanse and Xywav, while others found relief through frequent movement, walking breaks, dietary changes like keto, and workplace accommodations through ADA paperwork, though some faced painful denials or even job loss. A recurring theme was the emotional toll of navigating a misunderstood illness, the necessity of self-advocacy without guilt, and the deep gratitude expressed by those fortunate enough to work for understanding employers or family, balanced by the grief and shame felt by members who were fired or denied accommodations despite their dedication and strong work ethic.

A MyNarcolepsyTeam Member

One day at a time. I have been fired numerous times and now I don't give it a second thought. I don't need the added stress. I work and then if I am tired, I take a break. If I don't feel comfortable driving to a customer, I reschedule. I am sick and tired (no pun intended) of making excuses so now I don't. I am a good worker and if that is not enough, I will find something else.

September 11, 2022
A MyNarcolepsyTeam Member

I've been with a state government for almost ten years now. Tried ada accommodations and denied twice. So I eat sparingly till dinner time (not recommended) and take frequent walks to keep from dozing off. Whether that be getting water or going to the bathroom, it helps get me moving.

March 31
A MyNarcolepsyTeam Member

I am disabled for the past 20 years! But when I worked, I worked night shifts! Took me awhile to learn how to sleep at night!

September 27, 2023
A MyNarcolepsyTeam Member

I started Keto diet! It is supposed to give you more energy! We will see what happens! I hope it does!

June 30, 2022
A MyNarcolepsyTeam Member

I used energy gum. It's the same as 1 cup of coffee. On bad days I eat 5 at a time. On good days I go through 3-5 a day. It doesn't taste great and you will want water because it has almost no sugar but it works. I ussually take it as I'm crashing. I also do coffee. I drive 300-500 miles a day and work 13 to 18 hour days. The sugar your taking in will make you sleepy and too much coffee is hard on the stomach.

June 18, 2022

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