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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Does Narcolepsy Impact You Emotionally?

How Does Narcolepsy Impact You Emotionally?

A MyNarcolepsyTeam Member said:

Hi Teri. It is true that one's life changes and we also become anti-social just because we just don't have the strength to put up with socializing. You are not alone in feeling that way.

posted 11 days ago
A MyNarcolepsyTeam Member said:

Showing emotion drains what I call battery life no matter if it's happy sad or anger emotion. I only have so much battery life. But I can enjoy something but getting excited about it you won't see... in order so I can enjoy it

posted 11 days ago
A MyNarcolepsyTeam Member said:

For a long time, narcolepsy made me feel like less of a person because in my mind I wasn't able to do as many activities during a day that I thought I *should * be doing. But once I got rid of the "should be" thinking patterns, I was able to find peace. That's not to say I don't still have the occasional frustrated feeling of wishing I could do more, but I am generally more at peace now that I've accepted it. Great question!

posted 11 days ago
A MyNarcolepsyTeam Member said:

MEG Military energy gum. 1 piece is the same caffeine as one cup of coffee. You get 5 pieces in a pack and I buy a little case of it that comes with 24 packs. I get it from amazon for $28.36. I go through one to two of those a month. It doesn't taste good but the chewing helps me stay awake. If I keep on top of the energy it helps break the sleep cycle. If I'm non stop crashing I chew 2-5 pieces at once. You must drink a lot of water all day to mega dose of caffeine. Your skin will also dry out. I average between 2-3 liters of water a day.

The trick is to punch the sleep in the face. So as the sleep builds you take a piece. If that doesn't work you do 2. If that doesn't work you could do 5 but your probably gonna crash so it's best to give into the nap and take a piece when you first wake up. You also need to do something. Yesterday I started scanning bills. Sometimes it's folding laundry. It's not perfect I also drink coffee and sometime 5 hr energy but that's mostly for the vitamins. If you like 5hr energy you can buy that buy the 2 liter as well. I found that it stops working after a few times. The gum has been my best weapon.

Please note: Be careful, the amount of caffeine I consume every doctor will tell you it's crazy. On a good day I consume 12 cups of coffee worth of caffeine a day but on terrible day I can consume as much as 35-45 cups. It's terrible for the skins and the heart but I do pretty good most days. I make my lists and I get most done. Start small with the lists and then get better. I can even study online on good days. Today is starting off as one. I started everyday with one piece of gum as soon as I woke up. I'll probably get away with 2 more pieces and 3 shots of espresso by lunch because of the driving. I'll also drive 190 miles by lunch and another 210 miles after. If I eat breakfast it will be light maybe oatmeal. If I eat lunch it will be as little as possible. Food makes me crazy tired. That's what did me in yesterday.

I recommend the gum because it can jump start you and help without making your stomach bad like coffee does. It's not magic and you can go too far so start slow your going to do it. The caffeine in the gum is gone after 15 minutes. Most that have tried it don't like the taste so I expect you won't either but for me I need to be awake so I don't taste it anymore.

posted 7 days ago
A MyNarcolepsyTeam Member said:

I saw an add for a drug called Sunosi. It's for day time wakefulness. The first day I took it was the first day I no longer felt the constant urge to go kick back in the recliner. I had been trying caffeine and energy drinks and was still sleepy. Ask your doctor about it. Sew if it helps!

posted 9 days ago
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