What Symptom Of Narcolepsy Do You Find Hardest To Manage? | MyNarcolepsyTeam

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What Symptom Of Narcolepsy Do You Find Hardest To Manage?
A MyNarcolepsyTeam Member asked a question 💭
posted July 21, 2022
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A MyNarcolepsyTeam Member

Sleep Attacks, when the barometric pressure gets below 30mb or it gets to be 78⁰ in the house, often have a sleep attack. I don't know where they got the idea of 20 minute
naps and feeling refreshed after that- I sleep for 2 hours and wake up groggy and feel like my; energy has been ciphoned off. Hypnogogic jerks and night terrors suck too, though.

posted September 22, 2022 (edited)
A MyNarcolepsyTeam Member

At first I didn't know what was happening to me,a numbness in my face would occur, my eyes would be barely open (as if I am high😀) then I experience a paralyzed feeling in my tongue, which causes me to slur if I'm trying to speak. As a CNA doing Homecare I try to stay busy or if my symptoms are uncontrollable I'll take a break from what I'm doing until my sleepiness pass. It's difficult at times,but I have to stay focused for my client.

posted September 28, 2022
A MyNarcolepsyTeam Member

The most difficult for myself is the Cataplexy, I have severe muscle loss and end up in the floor. Secondly I feel I only sleep 10 - 15 mins. Then I'm wide awake. Just Frustrated.

posted September 19, 2022
A MyNarcolepsyTeam Member

It's strange when you actually feel a wave of sleepiness. It is worse at work. I can feel it coming but I can't leave so I get up and move around.

posted September 25, 2022
A MyNarcolepsyTeam Member

For me, it took a long time for me to accept that this was actually happening to me so I had a struggle with I’m just lazy, I lack motivation, like it was all me and nothing to do with narcolepsy. So for me, the hardest part is knowing if my symptoms are coming from narcolepsy or whatever normal is

posted May 17, 2023

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