Connect with others who understand.

Sign up Log in
Resources
About MyNarcolepsyTeam
Powered By
Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Symptom Of Narcolepsy Do You Find Hardest To Manage?

A MyNarcolepsyTeam Member asked a question 💭
Birmingham, UK
July 21, 2022
View reactions
A MyNarcolepsyTeam Member

Sleep Attacks, when the barometric pressure gets below 30mb or it gets to be 78⁰ in the house, often have a sleep attack. I don't know where they got the idea of 20 minute
naps and feeling refreshed after that- I sleep for 2 hours and wake up groggy and feel like my; energy has been ciphoned off. Hypnogogic jerks and night terrors suck too, though.

September 22, 2022 (edited)
A MyNarcolepsyTeam Member

At first I didn't know what was happening to me,a numbness in my face would occur, my eyes would be barely open (as if I am high😀) then I experience a paralyzed feeling in my tongue, which causes me to slur if I'm trying to speak. As a CNA doing Homecare I try to stay busy or if my symptoms are uncontrollable I'll take a break from what I'm doing until my sleepiness pass. It's difficult at times,but I have to stay focused for my client.

September 28, 2022
A MyNarcolepsyTeam Member

The most difficult for myself is the Cataplexy, I have severe muscle loss and end up in the floor. Secondly I feel I only sleep 10 - 15 mins. Then I'm wide awake. Just Frustrated.

September 19, 2022
A MyNarcolepsyTeam Member

It's strange when you actually feel a wave of sleepiness. It is worse at work. I can feel it coming but I can't leave so I get up and move around.

September 25, 2022
A MyNarcolepsyTeam Member

For me, it took a long time for me to accept that this was actually happening to me so I had a struggle with I’m just lazy, I lack motivation, like it was all me and nothing to do with narcolepsy. So for me, the hardest part is knowing if my symptoms are coming from narcolepsy or whatever normal is

May 17, 2023

Related content

View All

Can Someone Please Help Me Understand Why Narcolepsy Takes So Long To Diagnose? What's Wrong With Our Society?

A MyNarcolepsyTeam Member asked a question 💭

How Do You Manage Your Narcolepsy At Work?

A MyNarcolepsyTeam Member asked a question 💭
San Francisco, CA

Does Any One Eles Have Narcolepsy1 And Sleep Apnea?

A MyNarcolepsyTeam Member asked a question 💭
West Covina, CA
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of Use, and our Health Data and Privacy policies.
Already a Member? Log in