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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Brain Fog

Brain Fog

There are many frustrations with Narcolepsy, but not being able to THINK is the most important complication of this condition for me from a quality of life standpoint. Can anyone relate to this and share their experiences (describe your "brain fog" sensation, what makes it better/worse, conversations/responses from doctors) and what medications/doses work best for you (prescribed or the desired dose)? Any lifestyle changes?

posted July 29
A MyNarcolepsyTeam Member

I’ve been trying natural remedies because hitting menopause made my brain fog an absolute nightmare. I work in government in a legal field and brain fog is not compatible with it at all! I’ve begun practicing strict, clean keto and added L-citrulline malate supplementation to my stimulant. It’s an amino acid that should be produced in the body naturally but we are deficient in it, if my understanding is correct. It’s also a vacillator, so it opens up the blood vessels, thus lowering blood pressure. I’ve been using it for 4 days with some success. It’s a bitter powder that you mix with water and drink 30 minutes before food or caffeine. I take 4 grams in a small shot glass upon waking and 2 hours before lunch. I still get the 4 p.m. crash from my stimulant but the brain fog has improved and my blood pressure too. I tried 5 grams and it made my heart race so I backed down to 4. I learned about it from a Facebook narcolepsy group. I’ll keep you posted on how it’s going if you’re interested. I also ordered some magnesium glycinate from Amazon to see if it will help my insomnia. I find the insomnia and the multiple night awakenings affect my brain fog the most.

posted August 27
A MyNarcolepsyTeam Member

I think your experience is quite common among narcoleptics. Family usually mean well and try to be supportive, but there is a lot they simply do not get!

posted September 28
A MyNarcolepsyTeam Member

I get those moments as well, and it is so frustrating! I can't tell you how many trips I have made to the same room to get something, all because by the time I GET to that room, I have completely forgotten what I went for!

I don't know if there is anything that can stop this brain fog completely. For me, I keep lists: my calendar is one and I will enter the smallest item in it so I don't forget it.
(My smartphone sends me an audible "reminder" every nite at 8pm to clean out the cat's litter box. For as long as I have done that, you would think it would be burned into my brain by now, but NOT REALLY! Most often I remember myself, but many times it is the reminder that my cat appreciates I have set...)

I also try to organize thing down to the simplest level possible. AND -- I don't always get it right the first time. If it doesn't work well, I redo it.

Additionally, I have had to drastically simply my life . These days, two outside the house or in-house planned projects is about the maximum I can handle if I want to be alert, or do something well. Some days, that drops to one. Fortunately, I am retired and this works. When I was working, even just part-time - it was a LOT HARDER.

posted September 10
A MyNarcolepsyTeam Member

I find I'm easily distracted and have trouble concentrating, where once those were strong points for me. And I'm never sure if memory problems are due to age or my narcolepsy.

posted July 31
A MyNarcolepsyTeam Member

I can absolutely relate to this! I have trouble spelling now and as Teri mentioned, recalling the date, day of the week, etc. People's names, people I've known my entire life! It almost feels like early onset Alzheimer's. It's so frustrating, I haven't found anything that helps either :(

posted October 5

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