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About MyNarcolepsyTeam
Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Do You Wish Your Doctor Better Understood About You?

What Do You Wish Your Doctor Better Understood About You?

posted 8 days ago
A MyNarcolepsyTeam Member said:

Ritlin does work

posted 6 days ago
A MyNarcolepsyTeam Member said:

Maybe it is time to change doctors. Because of my health situation I have several doctors and surprisingly enough they seem to know about narcolepsy
and understand me. As I was discussing narcolepsy with one doctor and when he left the room , the nurse came up to me and thanked me for teaching her about narcolepsy. She said that she did not know all that was involved with this condition. She just thought that people fell asleep a lot. I think the part that really got her is when I updated my meds on my chart I pointed out that I quit taking provigil because although it kept me awake it increased my hallucinations to vivid and real life color. So I was awake but I guess still going into REM .I would actually dream in a micro nap what the person I was talking to was saying then come out of it and get the conversation wrong mixing the dream and the real conversation.. When people hear about my craziness with narcolepsy it opens their eyes.

posted 6 days ago
A MyNarcolepsyTeam Member said:

I wish my Doctors would listen to me better and stop trying to change my meds that work. I wish they would understand that I am not a Guinea Pug to experiment on.

posted 7 days ago
A MyNarcolepsyTeam Member said:

They are trying to take me off my adhd meds and I will be a zombie without them. I feel y'alls pain!!@@

posted about 3 hours ago
A MyNarcolepsyTeam Member said:

My primary care provider was awesome .. I couldn't understand why all of sudden different things started to occur. I had hyperthyroidism, which it's been said thyroids can cause a lot of problems, he performed several test while treating my thyroid, then I was referred to the Endocrinologist. Who ordered a Sleep Study for 2;days . after giving him/her all that was happening and test results showed I had EDS . As it was stated earlier some doctors will care enough to seek others opinion.

posted 3 days ago
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