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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Do You Experience Insomnia With Narcolepsy? Any Ideas To Help With Insomnia?

MyNarcolepsyTeam asked a question šŸ’­
San Francisco, CA
October 28, 2022
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A MyNarcolepsyTeam Member

Yes. I take magnesium before I get under the covers. Tried melatonin but developed resistance to it quickly. I also have a lavish nighttime routine that helps my body know I’m winding down. I also enjoy solitaire or word puzzles to help me sleep. My phone also goes on sleep mode by 11. I also smoke weed or use a cbd tincture to knock me out.

November 26, 2022
A MyNarcolepsyTeam Member

I hear you on that. I have been diagnosed with depression and anxiety and I get suicidal thoughts with that when I have an episode occur(about two to three times a week). I sometimes can't sleep because of that. However, when I take the prescription medicines for that along with everything with the antidepression medicine I may sleep(and have slept)as much as 16 hours in one day.

February 1, 2023
A MyNarcolepsyTeam Member

I battle times with insomnia.. it isn't bad but there are times my mind just won't stop. That is different than what triggers the narcolepsy. It is hard to explain to others. I get it.

January 4, 2023
A MyNarcolepsyTeam Member

It makes you feel insane to explain that to others who don't suffer from it. I don't know about anyone else but I also suffer from sleep Paralysis with hallucinations on the nights I crash. That truly makes me feel insane.

October 30, 2022
A MyNarcolepsyTeam Member

I was diagnosed with insomnia since I was around 7, then at 38 I fell asleep for 18+ hours a day for around 6 weeks. The past two years have been a struggle with narcolepsy type 1 diagnosis earlier this year. Despite classic narcolepsy symptoms I still have bouts of insomnia that last a few weeks. Then I go back to the narcolepsy sleepy all the time during the day and tossing and turning and scared at night from vivid dreams and hallucinations. I prefer insomnia and that feeling much better than narcolepsy 1.

October 29, 2022

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