Has Anybody Had Better Results With WAKIX Vs. Combination Of SUNOSI And XYWAV? | MyNarcolepsyTeam

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Has Anybody Had Better Results With WAKIX Vs. Combination Of SUNOSI And XYWAV?
A MyNarcolepsyTeam Member asked a question 💭

I am currently taking SUNOSI during the day and tried to switch to WAKIX because of my cataplexy and sleep paralysis. My insurance would not approve WAKIX until I tried XYWAV so I started XYWAV. I find it almost ridiculous that XYWAV is twice nightly dosing! My anxiety is worse and affecting my overall sleep because half the time I can't get that second dose accomplished between 1-2 am.

posted December 6, 2022
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A MyNarcolepsyTeam Member

I know the feeling but xywav changed my life completely!! That being said I created an automated system to make sure I took my second dose, basically it starts the timer as soon as I take the first dose and once it goes off it won't turn off untill I put the second dose container in upside down proving I took it.

I'm developing a production version that is stand alone. Hopefully I'll be able to release it soon :-)

posted December 6, 2022
A MyNarcolepsyTeam Member

BrettHansen, can you supply a couple of details for how Xywav changed your life?.. I start it soon.

posted February 6, 2023

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