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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has anybody had better results with WAKIX vs. combination of SUNOSI and XYWAV?

A MyNarcolepsyTeam Member asked a question 💭
Ada, OK

I am currently taking SUNOSI during the day and tried to switch to WAKIX because of my cataplexy and sleep paralysis. My insurance would not approve WAKIX until I tried XYWAV so I started XYWAV. I find it almost ridiculous that XYWAV is twice nightly dosing! My anxiety is worse and affecting my overall sleep because half the time I can't get that second dose accomplished between 1-2 am.

December 6, 2022
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A MyNarcolepsyTeam Member

I know the feeling but xywav changed my life completely!! That being said I created an automated system to make sure I took my second dose, basically it starts the timer as soon as I take the first dose and once it goes off it won't turn off untill I put the second dose container in upside down proving I took it.

I'm developing a production version that is stand alone. Hopefully I'll be able to release it soon :-)

December 6, 2022
A MyNarcolepsyTeam Member

BrettHansen, can you supply a couple of details for how Xywav changed your life?.. I start it soon.

February 6, 2023

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