A lot of good things have been shared already.. there are a lot of things that aren't talked about enough. One that comes to mind is that, even when medicated to stay awake, it's no the same kind of 'awake' as if you'd had a good restful sleep. I can still fall asleep easily on my meds (adderall and sunosi) but if I'm doing something to keep my brain and/or body engaged it's easier to stay awake than if I weren't taking meds. My eyes are open and I'm technically 'awake' at times, but I feel like I'm walking around like a zombie or doing things half asleep. But hey! I'm not 'sleeping the day away' anymore and my naps are shorter on meds than without them.

I feel the same way, because family and friends cannot grasp the concept of you just cannot stay awake. Alot of people say you are just lazy, and if you just get up and do something, you will be ok. I can take my meds and fall asleep. I think the worst is how much this can really get you down and make you feel worse, and ALL ALONE!

I feel that narcolepsy should be accepted as a disability however it is not counted as such

I feel like there is tremendous lack of support from family, friends and people in general.

I think the hallucinations and vivid dreams aren’t spoken about enough. It’s very hard starting the day tired but it’s even harder starting your day, after your vivid dreams & hallucinations made you feel like you already finished a whole day. It’s hard getting out of bed to start a “real day” and realizing the one you just experienced isn’t real even though feel all of the emotions that come with it.