As I sit here reading everyone's responses, Im feeling so heavy and frustrated for all of us. I hate that this illness has no cure. For the struggle to live and function like the masses. It's difficult to accomplish when your tired all of the time. 😴
As much as it sucks as I read all your comments, it makes me feel so much better that I’m not alone and I’m not the only one going through it feeling like I’m crazy because all these things can’t be normal, right. especially only knowing one other person with this condition support is so necessary.
absolutely right . United we stand, Divided we fall. Especialy the fact that we lived with a life long uncarable medical conditions which unfortunately isolated us sometimes more than we would wanted. Again living with that condition since almost 60 years I saw the progress, in terms of medications, of medical supports and understanding, and with the expansion of internet some web site and foru, like this one, created the changes that when I was younger I could not received. The dark ages that some of us passed by are fortunately way behind.
I feel all of you so much! We all have so much in common. I hate it affects my pocket because I simply cant commute very long and im always tired. I hate when im workinv on the computer doing work and I have to focus and I start to fall asleep.
I am sitting in the parking lot (in the truck) at a Threshers Show because I don't feel safe walking around a crowd of people when I cannot keep my eyes open to focus and feel like I'm "sleep walking" in front of the whole county!