Has Anyone Else Done The Orexin Testing/ Lumbar Puncture? I Got It Done Two Days Ago, It Was Very Strange. | MyNarcolepsyTeam

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Has Anyone Else Done The Orexin Testing/ Lumbar Puncture? I Got It Done Two Days Ago, It Was Very Strange.
A MyNarcolepsyTeam Member asked a question šŸ’­
posted February 28
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A MyNarcolepsyTeam Member

Thank you. I have an upcoming appointment with my sleep doctor, so I'll be asking if that's something that could help her in regards to what treatment(s) she recommends. Hope your results are "good/helpful" for your situation.

posted March 7
A MyNarcolepsyTeam Member

My doctor did, because I am having a hard time coming off meds that I need to be off of for the mslt psg. Iā€™m kinda surprised he had me do it.

posted March 5
A MyNarcolepsyTeam Member

Did your doctor or you yourself request these test? Kinda wondering if it would be beneficial to have these test done myself?

posted March 5
A MyNarcolepsyTeam Member

Thanks for replying. Iā€™m still waiting on the results from mayo labs. It was weird because it took an hour for them to get the fluid with the needle in my back - and have me squeeze and push to try and get more for them to get out. I just thought they would draw and be done. It hurt some.

posted March 4
A MyNarcolepsyTeam Member

I haven't - always been terrified of a lumbar puncture, although my husband has had one and he said it was fine. We don't have labs here in South Africa that can do the Orexin test and we used to send it to the US but post Covid sending human tissue or liquid has become a nightmare so no one does it anymore. Have you had the result? And how was it strange?

posted March 2

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