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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Disapponted

A MyNarcolepsyTeam Member asked a question 💭
Lindale, TX

Does anyone know if people in the us can receive disability from social security for narcolepsy. How do you find a job that lets you sleep on the job?

September 13, 2024
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A MyNarcolepsyTeam Member

I did not get disability for Narcolepsy but I have 3 other orphan diseases as well. Geneticly I think from reading about Narcolepsy they are connected. Metabolism , Intestinal diseases, all tied into the autotonic systems. Try to find a physician who is a board certified diagnostician. I did not qualify for ssdi they said I was two weeks of work short of work to qualify. So for 30 years I have been on SSI that doesn't meet sub-poverty levels. Getting a lawyer make sure you don't sign any contract they shove at you read it and change that percentage they get if successful in your favor by half they know once you apply the back payments can be large and they try and take 40%. I got a free lawyer from my Counties legal Aid services. No percentage taken. Good luck and hugs.

September 16, 2024
A MyNarcolepsyTeam Member

Glen i got my disability in 2001, but it is hard. it took me 3 years. i am not sure it would have happened without my shrink.

September 13, 2024
A MyNarcolepsyTeam Member

Glenn, you are protected by the ADA. Whatever job you get, they are required to allow you a reasonable accommodation that allows you to do the job safely. There are limitations to which jobs will give you this protection, but most jobs will allow it with the proper documentation and disclosure to your employer. Jobs that it would be impractical to allow an employee to take a nap during the day will be harder to get that accommodation approved. But they are out there. And if you are ever fired or not hired for that reason, please contact the EEOC office in your area or your state EOC because depending on the circumstances and evidence (always document everything), you could have grounds for a lawsuit. Good luck to you my friend.

3 hours ago
A MyNarcolepsyTeam Member

It’s not but it’s a start

September 30, 2024
A MyNarcolepsyTeam Member

and that is suppose to make you happy. you can't live on that.

September 17, 2024
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