I was dynose for Narcolepsy at a young age. I had to deal with it and on my own learned how to help myself. When in my 40tys I found out What I had and got on med. I would say being young in some ways coping was a learn g thing not saying it's easy young or older , but for some reason I would think it would be crazy finding out older. What you think - the ones that got it later in the years?
I have to have caffeine! My neurologist has suggested decreasing a bit which I have done but still need some. With the narcolepsy and migraine issues no caffeine at all is a no go for me for sure.
I have not been forced to stop driving. Everywhere I drive is within 15 miles. If I have to go farther I ask for help from support group (family). They love me and understand what I am going through.
I wish they could understand that it is not that I am lazy. I get tired. Also that I am not losing my mind when it comes to the cataplexy spells. They are very rough on the body.
1. You know how you get your 7-8 hours of sleep from 10:00pm-6:00am? Since my brain skips the normal sleep stages, I get my 7-8 hours of sleep over a 24 hour period in fractured increments, which… read more
When I was first diagnosed beginning of high school, my doctor had me try a couple different treatments. One of them was Ritalin, but I was wary of pills and didn't want to go that route. College has really been testing my limits, and I'm starting to fall behind. Do stimulants help any of you guys? Which kinds help the most? Do side effects outweigh the pros? Thank you!
I'm retired now, for 2.5 years (yay me!!) but I would nap on my lunch break and eat lunch at my desk while working. Sometimes catch a little microscope on a 15 minute break. I also had FMLA with time… read more
I've not used Frankincense before to help energize me, but I recently started using it at night, along with lavender oil, in my aromatizer to help me fall asleep and reduce my nighttime narcolepsy… read more
Waking up in the morning and realizing I been sleeping on the toilet all night! Did that last night!