Questions & Answers
Get practical advice and insights from people who understand
Ok Was It A Shocker Being A Adult Finding Out You Had Narcolepsy?
Ok Was It A Shocker Being A Adult Finding Out You Had Narcolepsy?
I was dynose for Narcolepsy at a young age. I had to deal with it and on my own learned how to help myself. When in my 40tys I found out What I had and got on med. I would say being young in some ways coping was a learn g thing not saying it's easy young or older , but for some reason I would think it would be crazy finding out older. What you think - the ones that got it later in the years?
It really was a shock. I can reflect on my whole life and see the symptoms from my earliest memories.
What Aspect Of Narcolepsy Worries You The Most?
What Aspect Of Narcolepsy Worries You The Most?
What’s One Thing You Wish People Who Aren’t Living With Narcolepsy Could Understand?
Were You Forced To Give Up Your Driver's License After Your Diagnosis? How Did You Cope?
Were You Forced To Give Up Your Driver's License After Your Diagnosis? How Did You Cope?
I was young when I got diagnosed, so I never had a driver's license, but I decided myself that I would not attempt to get one, because it was a danger for people around me to be on the road with the… read more
What Analogy Would You Use To Help Someone Understand What It’s Like To Live With Narcolepsy?
What Analogy Would You Use To Help Someone Understand What It’s Like To Live With Narcolepsy?
1. You know how you get your 7-8 hours of sleep from 10:00pm-6:00am? Since my brain skips the normal sleep stages, I get my 7-8 hours of sleep over a 24 hour period in fractured increments, which… read more
Do Stimulants Help?
Do Stimulants Help?
When I was first diagnosed beginning of high school, my doctor had me try a couple different treatments. One of them was Ritalin, but I was wary of pills and didn't want to go that route. College has really been testing my limits, and I'm starting to fall behind. Do stimulants help any of you guys? Which kinds help the most? Do side effects outweigh the pros? Thank you!
Do You Consume Or Avoid Caffeine?
Do You Consume Or Avoid Caffeine?
How Do You Manage Your Narcolepsy At Work?
How Do You Manage Your Narcolepsy At Work?
What Is Your Morning Routine?
What Is Your Morning Routine?
What Is Your Favorite Hobby?
What Is Your Favorite Hobby?
Lucia, I listened to Chain of Fools, and you guys sound great! I'll have to listen to the others. What a nice way to spend time with friends doing something you enjoy, and others love to sit, relax… read more
