Has Anyone Ever Been On Adderal For A Couple Years And Then Develop Tardive Dyskinesia?

Am almost 42, live in Huntington WV and am womdering if there is anyone else with narcolepsy looking for someone to talk to for sypport or just a friend to listen IN PERSON. Preferably with small child also. Single mom seeking same for emotional relief

posted about 2 months ago

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Has Anyone Tried Doing 3 Doses Of Xyrem At Night Instead Of 2?

How did you structure it?

posted about 2 months ago

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Anyone Deal With Or Know About Narcolepsy Going Into Remission?

I've had since I was young. I have gone into what seems a hybernation state several times for several months to years at a time since. I'm 56 now. If this has happened to me, why can't remission be figured out so that we can put Narcolepsy in remission always?

posted 2 months ago

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Does Anyone Know How To Edit The Town And State You Are From?

My information says I am from Hermon, NY but I am from Hermon, Maine and can not find out how to change it. Any help would greatly be appreciated!

posted over 1 year ago

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Lori go to your profile and hit edit then save. I cant fix mine eather, or hit on your picture - hit on city , state - hit filter - change it - scroll down hit show. It changes it but then goes back… read more

edited, originally posted over 1 year ago

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I Sometime Fall To Sleep While Am Driving.But I Put It Off As I Am A Bad Driver.Did Anyone Do This Before?

posted 25 days ago

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I've done a couple times.

posted 18 days ago

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Hello. My Name Is Alex And I Live In Greater NYC Area.

I was looking for local / virtual support groups that meet and discuss IH (my condition; effectively treated exactly like Narcolepsy). Also wanted to find help in career change after working for 20 years and stopping about 2 years ago.

I thank you in advance and am very happy to join your group.

posted 9 months ago

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Hello Alex,. I apologise for letting so much time go by. If you haven't found the
help you were looking for, please let Sonja, myself or this team know if can help. Godspeed

posted 6 months ago

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Looking For Neurologist That Specializes In Sleep Disorders.

I live in Pembroke Pines, Florida and am looking for a new MD to treat my Narcolepsy. There are lots of them but very few treat sleep disorders. Unfortunately Ritalin and Adderall are not options for me because I have some heart Issues. I tried low doses of both and had to stop because of it.
All info is appreciated. Thanks!

posted 10 months ago

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Hey there, I worked at the Univ of Miami School of Med. a long time ago and while I was there, I saw a neurologist specializing in sleep disorders (I have Type 1 Narcolepsy). There are several sleep… read more

posted 3 months ago

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How Can You Find Out If You Have Narcolepsy?

I suffer from Major Depressive Disorder. But for many months I've been extremely tired to the point I feel like I can pass out if I don't lay down. I can sleep heavy for hours.

posted 11 months ago

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Definitely get a sleep study done. They just monitor your sleep nothing painful. I have done an all day one & 2 night ones. They said I sleep like I’m in a coma😳 very scary but good to know. I’ve… read more

posted 9 months ago

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