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Narcolepsy

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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Looking For Support And Friendship Through This

Looking For Support And Friendship Through This

Am almost 42, live in Huntington WV and am womdering if there is anyone else with narcolepsy looking for someone to talk to for sypport or just a friend to listen IN PERSON. Preferably with small child also. Single mom seeking same for emotional relief

Anyone Deal With Or Know About Narcolepsy Going Into Remission?

Anyone Deal With Or Know About Narcolepsy Going Into Remission?

I've had since I was young. I have gone into what seems a hybernation state several times for several months to years at a time since. I'm 56 now. If this has happened to me, why can't remission be figured out so that we can put Narcolepsy in remission always?

Does Anyone Know How To Edit The Town And State You Are From?

Does Anyone Know How To Edit The Town And State You Are From?

My information says I am from Hermon, NY but I am from Hermon, Maine and can not find out how to change it. Any help would greatly be appreciated!

A MyNarcolepsyTeam Member said:

Lori go to your profile and hit edit then save. I cant fix mine eather, or hit on your picture - hit on city , state - hit filter - change it - scroll down hit show. It changes it but then goes back… read more

edited, originally posted over 1 year ago

Hello. My Name Is Alex And I Live In Greater NYC Area.

Hello. My Name Is Alex And I Live In Greater NYC Area.

I was looking for local / virtual support groups that meet and discuss IH (my condition; effectively treated exactly like Narcolepsy). Also wanted to find help in career change after working for 20 years and stopping about 2 years ago.

I thank you in advance and am very happy to join your group.

A MyNarcolepsyTeam Member said:

Hello Alex,. I apologise for letting so much time go by. If you haven't found the
help you were looking for, please let Sonja, myself or this team know if can help. Godspeed

posted 6 months ago

Looking For Neurologist That Specializes In Sleep Disorders.

Looking For Neurologist That Specializes In Sleep Disorders.

I live in Pembroke Pines, Florida and am looking for a new MD to treat my Narcolepsy. There are lots of them but very few treat sleep disorders. Unfortunately Ritalin and Adderall are not options for me because I have some heart Issues. I tried low doses of both and had to stop because of it.
All info is appreciated. Thanks!

A MyNarcolepsyTeam Member said:

Hey there, I worked at the Univ of Miami School of Med. a long time ago and while I was there, I saw a neurologist specializing in sleep disorders (I have Type 1 Narcolepsy). There are several sleep… read more

posted 3 months ago

How Can You Find Out If You Have Narcolepsy?

How Can You Find Out If You Have Narcolepsy?

I suffer from Major Depressive Disorder. But for many months I've been extremely tired to the point I feel like I can pass out if I don't lay down. I can sleep heavy for hours.

A MyNarcolepsyTeam Member said:

Definitely get a sleep study done. They just monitor your sleep nothing painful. I have done an all day one & 2 night ones. They said I sleep like I’m in a coma😳 very scary but good to know. I’ve… read more

posted 9 months ago

Provigil

Provigil

what is nuvigil structure

A MyNarcolepsyTeam Member said:

never mind i looked it up thanks

posted 4 days ago
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