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Narcolepsy

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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Anafranil Is A Drug That Sounds Like It Can Do Something About It

Anafranil Is A Drug That Sounds Like It Can Do Something About It

I dont know if i am imagining this but ocd is said to keep you busy and a tablet or dosage amount could actually put you in a deep sleep than usual to keep you awake for the next day and so forward from then on.

Does Anyone Suspect They May Have Non-24?

Does Anyone Suspect They May Have Non-24?

My doctor laughed out loud when I suggested it but I described what I felt almost the same way the blind guy in the commercial over ten years before I ever heard of it. Obviously my doctor dismissed it out of hand because I'm not blind.

Would Anyone Be Interested

Would Anyone Be Interested

Research opportunity for Narcolepsy Type 1 with Cataplexy - male patients. This is a 30-min online survey, and the compensation is $45.

Please sign up at the link below to receive an email invite to the survey.

https://rarepatientvoice.com/MNTutherow/

Virtual Neurologist Doctor Recommendations?

Virtual Neurologist Doctor Recommendations?

I feel very limited with the doctors that are "in network" and within driving distance. Does anyone have any recommendations on a good neurologist that specializes in narcolepsy that does virtual appointments?

A MyNarcolepsyTeam Member said:

I was told that you have to go to California or New York. There is no one near me that is a good doctor. I was diagnosed by a neurologist in NC in 1983 and since then I have just kept renewing my… read more

posted 18 days ago

Anyone Deal With Or Know About Narcolepsy Going Into Remission?

Anyone Deal With Or Know About Narcolepsy Going Into Remission?

I've had since I was young. I have gone into what seems a hybernation state several times for several months to years at a time since. I'm 56 now. If this has happened to me, why can't remission be figured out so that we can put Narcolepsy in remission always?

A MyNarcolepsyTeam Member said:

I'm dealing with something similar now. You see, I'm a strange case. For thirteen long years not only was I not diagnosed, but because I was dealing with something I didn't understand and people were… read more

posted 2 months ago
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