I Don't Recall Adding The Number 9 (Richard9) To My Name. Where Does This Come From, How Is It Meaningfull, Can 9 Be Removed. | MyNarcolepsyTeam

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403 questions
I Don't Recall Adding The Number 9 (Richard9) To My Name. Where Does This Come From, How Is It Meaningfull, Can 9 Be Removed.
A MyNarcolepsyTeam Member asked a question 💭
CBD Question
A MyNarcolepsyTeam Member asked a question 💭

Hello - I am looking into CBD oil or oral spray - curious if anyone has tried this and what dosage was beneficial? thanks!

Has Anyone Heard Of DSIPs?
A MyNarcolepsyTeam Member asked a question 💭

Is anyone currently being treated for narcolepsy for dopamine inducing sleep peptides? If so - do you find them effective?

Is There Progress Being Made On Narcolepsy And Has There Been Any Breakthrough Recently?
A MyNarcolepsyTeam Member asked a question 💭
Anyone In Northern Idaho?
A MyNarcolepsyTeam Member asked a question 💭
Why Is It That TX SSI Doesn’t Want To And Rarely Recognizes Narcolepsy And ADHD ???
A MyNarcolepsyTeam Member asked a question 💭
What Has Your Doctor Suggested When No Medication Regimen Is Working?
A MyNarcolepsyTeam Member asked a question 💭

The only common recommended medication I have not tried is Wakix. Currently taking high doses of sunosi, nuvigil, and vyvanse daily. Seems like all the regimens work for about 2 weeks then back to feeling like I did prior to diagnosis.

Baltimore Doctors?
A MyNarcolepsyTeam Member asked a question 💭

Does anyone know of a good sleep medicine doctor near Baltimore. I have a great doctor, but it’s an 80 min drive from me. Baltimore would be so much closer.

I Am Looking For A Doctor To Treat My Narcolepsy.
A MyNarcolepsyTeam Member asked a question 💭

Preferably a doctor in Lake County Illinois. My former doctor retired, and was not a part of a group.

Does Anyone Take Xywav? Does It Help?
A MyNarcolepsyTeam Member asked a question 💭

I’ve been on Xywav for a couple of months and don’t notice much of a difference, if any. I will admit, I do not wake up every night for my second dose. I set alarms. I just never actually wake up. I want to see if I can try the new sodium oxybate, Lumryz. Anyone have any thoughts or experiences like this?

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