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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
448 questions

Narcolepsy And Severely Sleep Deprived

A MyNarcolepsyTeam Member asked a question 💭

Even though I sleep 9-10 hours a night, my neurologist said that I have been severely sleep deprivation for over a year and it is effecting my memory and cognition to the point of being diagnosed with Mild Cognitive Disorder.. Anyone else?

A MyNarcolepsyTeam Member

I’m glad to hear Lumryz is helping. How many milligrams? I tried it but had to stop due to side effects. I was a week on the 4.5mg, I started the 6mg and next day had to go back to 4.5mg. After a… read more

posted June 30

Are You Frustrated With Finding Effective Treatments For Narcolepsy?

A MyNarcolepsyTeam Member asked a question 💭
A MyNarcolepsyTeam Member

Lots of naps and vitamins.

posted July 18

Does Anyone On Here Have An At Home Job? It's Been Hard Driving To Work And Staying Awake. Started Wakix So I'm Hoping That Will Help Soon

A MyNarcolepsyTeam Member asked a question 💭

I have narcolepsy with cataplexy and it's hard to do certain jobs. I have to keep busy constantly

A MyNarcolepsyTeam Member

I know the vibes all too well

posted June 27

Does Anyone Know How To Start The Process Of Getting A Service Dog For Narcolepsy?

A MyNarcolepsyTeam Member asked a question 💭
A MyNarcolepsyTeam Member

I don't have a certified narco service dog, but my pup my daughter got last December will herd me to lay down and lay on my legs right before a sleep attack hits. Smart girl! I would love to get her… read more

posted June 25

Does Anyone Ever Spontaneously Come Out Of This Ever? I’m Just Looking For Any Hope Whatsoever.

A MyNarcolepsyTeam Member asked a question 💭
A MyNarcolepsyTeam Member

Yes, there are cases that have totally recovered. Very uncommon but it does happen.

posted June 30

I Just Want To Find Hope. How Does Somebody Like Me Ever Find A Relationship? I Fear I Will Never Be Worthy Of Having A Good Relationship

A MyNarcolepsyTeam Member asked a question 💭
A MyNarcolepsyTeam Member

I did! Hang in there! There’s a lot of people in the world. Yes, it’s going to be more of a challenge, (goes without saying, yeah? 😸) but don’t give up. I met my sweetheart after I got narcolepsy, so… read more

posted June 9

I Get Extremely Tired With Narcolepsy After Hard-core Swimming Class As Soon As I Eat Anything After Workout

A MyNarcolepsyTeam Member asked a question 💭
A MyNarcolepsyTeam Member

I run, and with longer runs, I bring glucose tablets or maple syrup. I put a Gatorade like mixture in the water in my camelbak. (Dextrose plus a little salt) . Helps level it out.

posted June 30

Which Meds, Prescription Or Non, Have Worked The Best To Help Lessen The Sleepiness During The Day For You? Same Question, But Cateplexy?

A MyNarcolepsyTeam Member asked a question 💭

GeorgeW.

A MyNarcolepsyTeam Member

I've been on instant release Adderall since diagnosis in 2011 and it's worked well enough, so I've been afraid to try anything else. However, it can affect my ability to fall asleep some nights and I… read more

posted June 10

How Does Everyone Handle The Appetite Rollercoaster? I’m Not Hungry All Day But Get Hungry In The Evenings.

A MyNarcolepsyTeam Member asked a question 💭

I take 60 mg of addrrall XR in the mornings just to be able to do any sort of daily activities and some afternoons I have to take a 10 mg adderall tablet just to get through the rest of the day.

A MyNarcolepsyTeam Member

Don’t take too many stimulants. I have never taken stimulants, but all the western medicines I have taken can only control the dosage and then the dosage becomes larger and larger. In the past, the… read more

posted June 16

How Do You Guys Get The Most Out Of This Site? I See A Lot Of People Don't Come Online Frequently And I Need Support With The Functionality

A MyNarcolepsyTeam Member asked a question 💭
A MyNarcolepsyTeam Member

This site is very awkward and frustrating to use (for me) and navigate around in, as well as having huge, empty, space filling areas of…really, nothingness. I’m sure whatever professional website… read more

posted June 12 (edited)
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