Questions & Answers

I know with chronic fatigue syndrome, you can push yourself too hard and then have consequences of that in the following days. Do you feel the same thing with narcolepsy?

It's always bad but it's usually about the same intensity. I mean we can start to move a little with enormous effort, or we can make a little noise by trying to scream or we can blink or move our eyes and hopefully a spouse notices and will shake you to wake u up. Even prayer when we see the "demonic" entity. We can see that our struggles are starting to work. We are breaking free. Then when we wake up we feel a little better and a little less afraid of the next encounter. BUT (I suspect many of… read more

The other day I had fallen asleep because I had forgotten to take my medicine. When I woke up I stood then took a step and my whole body crumpled beneath me. I couldn't even reach out my arms to stop the fall. This has never happened to me before but I also have never gotten right up after an episode. Normally I gather myself together mentally and then move. So I didn't know if this was something I should worry about.

I went to my doctor and explain to them that I thought I might have ADHD however, it is not being effectively treated because I was told that the medication for ADHD had the opposite effect in people who had narcolepsy and that’s why it worked. However, if you have ADHD and narcolepsy, does it work for one and not the other? How are you treated for both conditions?

If you suffer from sleep paralysis and it started before the age of smart phones and google, how did you react? How long did you go without knowing what was happening?

I was diagnosed with narcolepsy in 2006. My wife and I are expecting a baby so I once again saw a sleep specialist here in the US (I moved from Europe). They are suggesting a drug called Xyrem; can anybody share their experience with it?

For context: I have been taking other (not very helpful) medications for the past 10+ years. The doctor's description of Xyrem was a bit odd (e.g., having to wake up during the night to take a second dose?), so was curious to see if anybody has tried this and… read more

And on the 2 / 200mg name brand Provigil daily. What time span between doses and on the second dose is there a cut off time? Based on if you take it any later you wouldn't be able to fall asleep. Or what?