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Narcolepsy

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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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What Narcolepsy Symptom Do You Have That You Didn't Expect?

What Narcolepsy Symptom Do You Have That You Didn't Expect?

A MyNarcolepsyTeam Member said:

ok so I didn't have real insomnia I just didn't sleep. The longest I went was two weeks. Then I got horribly sick and almost died from pneumonia. Here's what helped me. Take 15 minutes a day and… read more

posted 11 days ago

Has Anyone Been Diagnosed With Chronic Fatigue Syndrome In Addition To Narcolepsy?

Has Anyone Been Diagnosed With Chronic Fatigue Syndrome In Addition To Narcolepsy?

A MyNarcolepsyTeam Member said:

Yes, I have fibromyalgia, Chronic Fatigue, sleep apnea and use oxygen too! Plus Narcolepsy and a lot of other things wrong with me!

posted about 1 month ago

What Questions Should I Be Asking My Doctor/specialist?

What Questions Should I Be Asking My Doctor/specialist?

A MyNarcolepsyTeam Member said:

And read about the test retest reliability of the test. It surprised me.

posted about 1 month ago

How Do You Manage Your Narcolepsy At Work?

How Do You Manage Your Narcolepsy At Work?

A MyNarcolepsyTeam Member said:

I used energy gum. It's the same as 1 cup of coffee. On bad days I eat 5 at a time. On good days I go through 3-5 a day. It doesn't taste great and you will want water because it has almost no sugar… read more

posted 11 days ago

What's The Worst Situation You Fell Asleep In?

What's The Worst Situation You Fell Asleep In?

A MyNarcolepsyTeam Member said:

Driving and cooking! I don’t do both when my narcolepsy is acting up!

posted about 1 month ago

What Do You Wish Your Doctor Better Understood About You?

What Do You Wish Your Doctor Better Understood About You?

A MyNarcolepsyTeam Member said:

What starts as the destruction of our sleep metronome often leads to the destruction of life as we knew it, the death 💀 of our original life plan. That’s grief!

posted 2 months ago

How Many Injuries Have You Had? And Most Bizarre Behaviors

How Many Injuries Have You Had? And Most Bizarre Behaviors

I always thought I had something wrong with my brain based on my bizarre accidental injuries, guess narcolepsy was always the cause.

Here's my list
1. Forgot which side of the road to drive on
2. Burned myself many times with clothing iron, flat iron.
3. Pinched finger badly while putting umbrella down
4. Slammed hand in folding table
5. Forgot to put car in Park multiple times
6. Broke my finger and split it down to the bone with electric hedger (finger was in half at the top)

Bizarre sleep… read more

A MyNarcolepsyTeam Member said:

Omg! I have very vivid dreams also. I sleep talk as well. Recently I had a dream that had some snakes 🐍 and an Alligator. The snake jumped into the alligators mouth and the alligator turned towards… read more

posted 18 days ago

Has Anyone Else Used Illegal Stimulants And Then Discovered Why Later Life When You Were Diagnosed With Nargosy

Has Anyone Else Used Illegal Stimulants And Then Discovered Why Later Life When You Were Diagnosed With Nargosy

Don't judge me. This coming September I will have 4 years clean and sober. Since I was 25 and I have abused methamphetamine. And it didn't really get me high it just allowed me to function and do things that everyone else was doing my age. Has anyone else found that they were literally self-medicating with stimulants?

A MyNarcolepsyTeam Member said:

So I'm a 70's child. Growing up getting high was a way of life and taking stimulants was as well. I wasn't diagnosed until Early 90's. By then I was burning through a pound to two pounds of weed a… read more

posted 11 days ago
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