I've been to sleep drs., resulting in a Cpap. Neurologists, etc. They won't even discuss narcolepsy because I don't "fall down when I laugh"!! My cousin had narcolepsy (now deceased) so I know how difficult it is to get a diagnosis. What should I do next?! I've been miserable with this since high school (I'm now 70!)
I take 40 MG of Adderall XR twice a day and have been for a long time. Now my morning dose isn't always effective sometimes for 2-3 hours ornot at all. The 2nd dose still does ok. I can't continue to live like this and my sleep Dr didn't pay any attention and just made me an appt for next year!! I'm so frustrated.
I have recently been diagnosed with narcolepsy without cataplexy. I'm on Adderall 30 mg 3x daily. I've noticed if I don't get a good 10-12 hours of sleep, my Adderall won't work as well. I still have severe brain fog, embarrassingly amounts! I have nightmares so realistic I have to go check on my family. My doctor said he doesn't want me on either med typical for narcolepsy as it can cause Steven's Johnson syndrome. What can help with this? Medicine or otherwise. Thank you
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Is there anyone who has experienced cataplexy on a daily/regular basis? & If so what exactly do you experience during an attack? Was anyone misdiagnosed with Pots or epilepsy?
Every afternoon I go through this period of feeling like my brain isn't working right. I'm aware of all my surroundings, but feel completely focused. It's so hard to explain. Even the inside of my head feels different. Almost like out of body experiences. When that happens I'm not able to function well. I continuesly fall asleep. I just can't talk either, cause I don't remember what were taking about and all of a sudden I start talking about something way off the subject at hand. This has been… read more
I have a teenager with narcolepsy who is really struggling. He has had averse reactions to medications and has a hopeless attitude. I can see how much he is struggling and suffering. When I try to help him and make suggestions, he gets angry with me and frustrated. He has a lot of supports in place but he is in the worst place right now. How do I support him and support myself at the same time? It is so hard to be a mother and feel this helpless.
I have narcolepsy. Which explains so very much now. Alot of things make sense. I won't get into my whole sappy life, so here goes my question
I have multiple diagnoses
2 open heart surgeries for mitral valve replacement. Uncontrolled diabetes Ii, HBP, cholesterol, CHF, Rheumatic Heart Disease, Fibormylgia, back pain, Gastrointestinal issues, marjor depression, anxiety, PTSD....and newly diagnosed Narcolepsy. What are my chances for getting approved for disability??? I'm worn out… read more
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