Quick Links
About MyNarcolepsyTeam
Powered By
Tried hooking myself up to 2 tens units while driving from Arizona to Louisiana.
Not as good as you may think
I have mild sleep apnea in additional to type 2 narcolepsy, so my sleep doc suggested positional therapy to help me sleep on my sides. However I also have chronic pain in my shoulders and neck and hips which makes it painful to sleep on my sides. Sometimes it's so bad (like last week) that the pain makes me nauseous. I was in bed all day and kept throwing up. It would greatly help my pain problems if I could sleep on my back, but I can't because of the sleep apnea. I know many CPAP users don't… read more
If I didn't have my cpap I would probably be dead by now. I can't sleep on my side or back any longer without additional support to relieve the stress it places on my spine, shoulders, neck, and hips… read more
I don't know what is going on with me, after trying wakix for the 3rd or 4th time with different combinations, only to have negative side effects 2+ months after starting I've given up trying to make it work.
This issue is after each try those negative side effects last far longer then I think they should, what happens is any type of stimulant (Adderall, nuvigil, focalin even caffeine) causes negative side effects to my body I feel like I have sinus pressure and my neck and abdomen are… read more
I'm going to purchase luminette 3 glasses to help with my EDS. (Edit: I removed "blue" from my question since I noticed I may have misnamed them.)
Here's the wording from the Luminette 3 website
Luminette® emits a safe blue-enriched white light peaked at 468 nm. This wavelength is proven to be the most effective at triggering the body's… read more
I am currently taking SUNOSI during the day and tried to switch to WAKIX because of my cataplexy and sleep paralysis. My insurance would not approve WAKIX until I tried XYWAV so I started XYWAV. I find it almost ridiculous that XYWAV is twice nightly dosing! My anxiety is worse and affecting my overall sleep because half the time I can't get that second dose accomplished between 1-2 am.
I'm not a mouth breather so this taping would not allow me to discontinue cpap therapy. I think I may be the only person who has never had any issue using cpap. The only time I've ever not used it was… read more
it has some influence in everybody you only have to go to a rough sea or waterfall to feel it so why can it over ride the sleep urge of epileptics which has an entirely different orign
I am not a medical person. I am a male person who has narcolepsy.
Questions - Do you take a med to keep you awake during daylight hours? If yes, is that med completely out of your system by… read more
I don't think it has much of anything to do with narcolepsy.
We never share your personal information with anyone.
Continue with Facebook
Sign up with your email