Teenager With Narcolepsy

I have a teenager with narcolepsy who is really struggling. He has had averse reactions to medications and has a hopeless attitude. I can see how much he is struggling and suffering. When I try to help him and make suggestions, he gets angry with me and frustrated. He has a lot of supports in place but he is in the worst place right now. How do I support him and support myself at the same time? It is so hard to be a mother and feel this helpless.

Narcolepsy And Disability

I have narcolepsy. Which explains so very much now. Alot of things make sense. I won't get into my whole sappy life, so here goes my question
I have multiple diagnoses
2 open heart surgeries for mitral valve replacement. Uncontrolled diabetes Ii, HBP, cholesterol, CHF, Rheumatic Heart Disease, Fibormylgia, back pain, Gastrointestinal issues, marjor depression, anxiety, PTSD....and newly diagnosed Narcolepsy. What are my chances for getting approved for disability??? I'm worn out… read more

With Narcolepsy Being Autoimmune, I'm Curious What Other Issues/conditions People Have Going On..

Does Anyone Have To Stop At A Parking Lot To Nap For About 20 Min If They Have A Long Drive Even After Taking Modafinil 200mg?

Has Anyone Ever Been On Adderal For A Couple Years And Then Develop Tardive Dyskinesia?

Has Anyone Turned To Illigal Drugs To Try To Stay Awake

Having Trouble Remembering Which Meds You Have Taken?

A doctor advised me decades ago to keep a record of my meds (amt, dosage, time) and past medical history. To this I added all my past meds that I was prescribed for narcolepsy but didn't work. The meds we get for our narcolepsy often have wicked side effects and we don't want to buy the same real estate twice. Every time you switch doctors (keep a record of the doctors' names you have seen also ) you have a record of what's already been tried. I can't stress this enough that this is VITAL and… read more

Feelings About Having Narcolepsy

Does anyone feel embarrassed by having narcolepsy? It use to bother me really bad. I accepted it a few years ago & was able to finally talk about it…now that people see that I’m more active than I use to be & try to depend on me to do things on time is starting to really bother me again

Treatment For Narcolepsy Without Diagnosis

Has anyone ever in the past been told by a doctor they think you have narcolepsy and put you on meds for narcolepsy. This happened to me years ago. Just wondering if anyone has ever been diagnosed with narcolepsy with a physicitrist when you told them all of your chronic health issues . Mine ask alot of questions about all my disorders and concluded that I did have narcolepsy in his judgment because as a child the mental issues I had up until adulthood was linked to narcolepsy. Physicitrist if… read more

Diagnose Of Narcolepsy

Hi everyone, I haven't had time to check into seeing about my sleep study that my doctor wanted me to do after I told him my medication after 16 years doesn't do as well. He is a family practitioner and doesn't know that much about narcolepsy and told me to go get another sleep study done. The more I research about sleep studies the more scared I become. I've seen where some are not accurate. And another thing I dont think I can go without my anxiety medication and we have to stop all… read more