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I am consistently always always always 5-10 minutes late. The perfectionist inside this Narcoleptic body absolutely hates it, to the point of extreme self hate and I swirl down into depression and very low self esteem, if any. I don't have much support from family or friends. They are always quick to point out my flaws and especially my lateness or cancellations with getting together because I'm too afraid to drive (as I can be having a really really really bad day and I don't feel safe driving)β¦ read more
Chance, thank you for the advice and for making me laugh.π
Is it working? Are you considering other medications to help you get a better night's sleep?
I take trazadone 300mg.
Thank you for the reply Lucia. May I ask what mg you take on each of these meds, sodium oxybate & venlafaxine, also do you take them in the morning, before bed or what times and once or twice a day?
β¦ read more
I was diagnosed a few yrs back with dry eye syndrome.?. I was told by my optometrist that people with Narcolepsy sometimes sleep with our eye slightly opened.!?. Wondering if this is true & if any others deal with this issue? π€
I also have dry eyes. They hurt real bad too and I canβt see. I found that a couple prednisone knock it back within 2 hours
Is anyone out there taking Wakix? Has it helped you? My concern are side effects, etc. Let me know what you think of it. Thanks!π΄
I've been taking it for 19 months. It does something but not enough by itself. I also take Methylphenidate to stay awake during the day.
Cold and dark I will never get up. I'm from the tropics. So the heat does not make me sleepy.
From my experience people are usually very judgmental and rude, even tho I have explained my condition, they still just think I'm lazy and uninterested, even though I have explained why I'm more tired and sleepy then the other people around me. i think it's because in my country only about 30 people are officially diagnosed with narcolepsy, so many people don't know what it is and refuse to learn about it and acknowledge that it is a real and seriously life changing.
I constantly feel judged and very misunderstood. It frustrates me that people donβt realize that it is a true struggle to live with narcolepsy. We can educate others and we can spread awareness but weβ¦ read more
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