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Ok Was It A Shocker Being A Adult Finding Out You Had Narcolepsy?

Ok Was It A Shocker Being A Adult Finding Out You Had Narcolepsy?

I was dynose for Narcolepsy at a young age. I had to deal with it and on my own learned how to help myself. When in my 40tys I found out What I had and got on med. I would say being young in some ways coping was a learn g thing not saying it's easy young or older , but for some reason I would think it would be crazy finding out older. What you think - the ones that got it later in the years?

A MyNarcolepsyTeam Member said:

Its crazy but even today my records say Daytime Solmnolence or excessive daytime sleepiness. NARCOLEPSY RIGHT why cant they just say that

posted almost 2 years ago
A MyNarcolepsyTeam Member said:

My diagnosis of narcolepsy with cataplexy was finally made in April 2014. I was just about to turn 50 and had began having the symptoms of narcolepsy and cataplexy when I was 11 or12 years old. But I believe I had it from far earlier. I remember my mother would always tell people that you could set your clocks by watching me. Asleep at exactly 9 p.m. every night, awake at 7a.m. every morning. Like someone flipped a switch. So I had dealt with so much by that time and had so many tests, medications, and doctors even sleep doctors say that I didn't have it when I finally got the diagnosis it was like I had my vindication for all the insults, embarrassments, and accusations.

posted almost 2 years ago
A MyNarcolepsyTeam Member said:

I don't hold my phone, a glass of liquid of anything, I hurry my fork from the plate to my mouth( so far I haven't stabed my lip)

posted almost 2 years ago
A MyNarcolepsyTeam Member said:

Your so correct, for years I had people call me lazy, I was fine when I was working, most of the time standing. Hard labor jobs were the best no stone to fall asleep. But I had a sit-down Job at a courthouse and it started early. I would get to work by the people blowing there horn at the green lights. Once there I would struggle to stay alert. Thankfully it was a high traffic area. It wasn't untill years later that I found my answers.
God bless!

posted almost 2 years ago
A MyNarcolepsyTeam Member said:

I was diagnosed at 35 , but it was appearent I had as a teenager, for the things I went through in life I would say it would have Ben good to know back then what was wrong , lol

posted almost 2 years ago
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