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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Treatment For Narcolepsy Without Diagnosis

Treatment For Narcolepsy Without Diagnosis

Has anyone ever in the past been told by a doctor they think you have narcolepsy and put you on meds for narcolepsy. This happened to me years ago. Just wondering if anyone has ever been diagnosed with narcolepsy with a physicitrist when you told them all of your chronic health issues . Mine ask alot of questions about all my disorders and concluded that I did have narcolepsy in his judgment because as a child the mental issues I had up until adulthood was linked to narcolepsy. Physicitrist if… read more

posted June 13, 2021
A MyNarcolepsyTeam Member

Recently it is you have to hit it 2/5 times, and I think you have to hit it within 15 minutes of falling asleep (as of late 2020)

posted June 14, 2021
A MyNarcolepsyTeam Member

You have to hit REM SLEEP within 30 minutes during a day time sleep study at least 3 times. At least I did back in the 90’s.

posted June 14, 2021
A MyNarcolepsyTeam Member

I'm pretty sure (at least in the USA) you require a sleep test to be diagnosed with narcolepsy. A psychiatrist can't diagnose it especially because there are many sleep disorders. If you have cataplexy then that is definitely more telling but I think you still require a sleep test to look at your REM.

posted June 14, 2021
A MyNarcolepsyTeam Member

Big..Get the diet straight..Some foods bring on attacks..If that is the case check with an allergist.

posted September 8, 2021
A MyNarcolepsyTeam Member

I see several specialists in addition to my primary dr. They don’t talk to each other but I keep them informed.

posted July 19, 2021

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