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Treatment For Narcolepsy Without Diagnosis
A MyNarcolepsyTeam Member asked a question 💭

Has anyone ever in the past been told by a doctor they think you have narcolepsy and put you on meds for narcolepsy. This happened to me years ago. Just wondering if anyone has ever been diagnosed with narcolepsy with a physicitrist when you told them all of your chronic health issues . Mine ask alot of questions about all my disorders and concluded that I did have narcolepsy in his judgment because as a child the mental issues I had up until adulthood was linked to narcolepsy. Physicitrist if… read more

posted June 13, 2021
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A MyNarcolepsyTeam Member

I have narcolepsy with cataplexy. Sleep apnea and bipolar depression. I’m on several meds & sleep with a bipap. With all this I’ve been able to work full time. I still have some sleepy episodes but few & far between. Also I put my car in park at red lights.

posted July 19, 2021
A MyNarcolepsyTeam Member

Recently it is you have to hit it 2/5 times, and I think you have to hit it within 15 minutes of falling asleep (as of late 2020)

posted June 14, 2021
A MyNarcolepsyTeam Member

I'm pretty sure (at least in the USA) you require a sleep test to be diagnosed with narcolepsy. A psychiatrist can't diagnose it especially because there are many sleep disorders. If you have cataplexy then that is definitely more telling but I think you still require a sleep test to look at your REM.

posted June 14, 2021
A MyNarcolepsyTeam Member

I see several specialists in addition to my primary dr. They don’t talk to each other but I keep them informed.

posted July 19, 2021
A MyNarcolepsyTeam Member

I was diagnosed 20 years ago. I was put on medicine. My new doctor decided she didn't want to refill them anymore, she sent me to a neurologist who didn't think I had narcolepsy. He sent me to a pulmonary doctor. They did and over night sleep study.
Went back to discuss the results. I saw another Doctor in the team. He believes me!!! He said I do not need another study to prove I have it. My PCP wants me to do though. ugh. All night and all day.

posted June 27, 2021

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