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Xyrem To Xywave

Xyrem To Xywave

Has anyone changed from xyrem to xywave? What is your experience with either of them? Both have changed the taste, and what foods I eat, has that happened to you?

A MyNarcolepsyTeam Member said:

I'm now taking Sunosi as well. It is expensive but it is worth it, its the only way I can function.

posted 4 days ago
A MyNarcolepsyTeam Member said:

I'm finally back on Xyrem, but haven't tried Xywave. This and the new stimulant Sunosi are the only meds I've tried that help me sleep better (Xyrem) and ensure I can stay awake during the day (Sunosi) as long as I take both. They are both very expensive, but if you have a sleep study done and have commercial (group) insurance you can usually get them with a prior auth at a reasonable copay. Check with your doctor if your insurance says they cover with a prior auth. Without these my live is miserable.

posted 4 days ago
A MyNarcolepsyTeam Member said:

It's not really in a bad change. I have tried new foods and even found some I like. I hope your feeling better with the xwave.

posted 7 days ago
A MyNarcolepsyTeam Member said:

Changing from to Xywav was a lot better for me, my ankles would swell due to the excess sodium in Xyrem. The only difference to me is the taste and the effects feel slightly different. It’s interesting that it’s affecting your taste buds, I hope it isn’t in a negative way. Maybe now would be a good time to experiment with new foods 😊

posted 8 days ago
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