Connect with others who understand.

sign up log in
About MyNarcolepsyTeam
Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Narcolepsy Symptom Do You Have That You Didn't Expect?

What Narcolepsy Symptom Do You Have That You Didn't Expect?

A MyNarcolepsyTeam Member said:

The inability to sleep, because of the excessive sleepiness. Having insomnia along with the narcolepsy, was a total surprise.

posted about 1 month ago
A MyNarcolepsyTeam Member said:

ok so I didn't have real insomnia I just didn't sleep. The longest I went was two weeks. Then I got horribly sick and almost died from pneumonia. Here's what helped me. Take 15 minutes a day and meditate. Get comfortable, not in the poses, just for sleep. Close your eyes. Tell your eyes to relax. Then your arms. Then your legs. Then tell your mind we are going on a trip. Then think of all the things you like to do and walk through each memory all the time telling yourself it's ok to relax. It takes time but I'm usually asleep in 5 minutes the most I skip sleep awake but if I consistently do it the pattern fades. I only sleep about 3-5 hours consistently. I don't dwell on tomorrow. I start by walking down a path. Then I fly and release each thing that bothers me. When I was younger the thoughts were more provocative. Anyway I hope it helps.

posted 11 days ago
A MyNarcolepsyTeam Member said:

I didn't know that me laughing would make me collapse the way l do. And the insomnia is driving me crazy.

posted about 1 month ago
A MyNarcolepsyTeam Member said:

Yeah sometimes I'm so tired I can't sleep. Other times the coffee or whatever I use to not fall asleep will continue to not let me fall asleep longer than I plan.

posted about 1 month ago
Already a Member? Log in