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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone Else Have Hormone Issues Possibly Caused By Narcolepsy?

Anyone Else Have Hormone Issues Possibly Caused By Narcolepsy?

I’ve been noticing a slow decline in my health and many are hormone based. I’m seeing an endocrinologist in a couple weeks.

posted 15 days ago
A MyNarcolepsyTeam Member said:

Marcia, that's good news your Adderall is working. None of the generic Adderall is working for me, for almost 3 yrs now. It has had negative impact on my life, but I've got new docs that are listening so... Ne er give up hope right?
I do wish there was a way to file Class Action suit against the drug manufacturers. I know they've changed the formula or the potentcy!

Take care. Talk soon.
Adriana

posted 11 days ago
A MyNarcolepsyTeam Member said:

Hello, your question is interesting. I too have noticed a decline in my health. I know that I have my two autoimmune issues: narcolepsy 1 and a renal malabsorption issue similar to Gettelman's syndrome. I'm holding out for the third autoimmune syndrome. I'll be thinking about you and the findings. Take care!

posted 15 days ago
A MyNarcolepsyTeam Member said:

I haven't noticed a shortage but I did notice this month my Adderall was from a different manufacturer. I live in Indiana. I have heard one other person here mentioned something about having to go to several different pharmacies to find it. I surely hope they're not running out of manufacturers. This medication has been my 'saving grace' . I can stay awake for most part, drive, be somewhat active. I will say just half the amount I have to take to function would make most people stay up for a couple of days though.

posted 13 days ago
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