Anyone Else Have Hormone Issues Possibly Caused By Narcolepsy? | MyNarcolepsyTeam

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Anyone Else Have Hormone Issues Possibly Caused By Narcolepsy?
A MyNarcolepsyTeam Member asked a question 💭

I’ve been noticing a slow decline in my health and many are hormone based. I’m seeing an endocrinologist in a couple weeks.

posted September 16, 2022
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A MyNarcolepsyTeam Member

Marcia, that's good news your Adderall is working. None of the generic Adderall is working for me, for almost 3 yrs now. It has had negative impact on my life, but I've got new docs that are listening so... Ne er give up hope right?
I do wish there was a way to file Class Action suit against the drug manufacturers. I know they've changed the formula or the potentcy!

Take care. Talk soon.
Adriana

posted September 20, 2022
A MyNarcolepsyTeam Member

Hello, your question is interesting. I too have noticed a decline in my health. I know that I have my two autoimmune issues: narcolepsy 1 and a renal malabsorption issue similar to Gettelman's syndrome. I'm holding out for the third autoimmune syndrome. I'll be thinking about you and the findings. Take care!

posted September 16, 2022
A MyNarcolepsyTeam Member

I have not had any issues with hormones, What I have noticed is that I now am diagnosed with other autoimmune syndromes. hypothyroid and Sjogren's. Very strange

posted August 8, 2023
A MyNarcolepsyTeam Member

Hi, yes my hormones have been causing my health to decline as well. I have Hashimoto’s and premature menopause at the age of 36.

posted July 13, 2023
A MyNarcolepsyTeam Member

So now I have a third autoimmune syndrome. Sjogren’s. And it is not fun I have dry eyes, dry mouth and excessive fatigue. it is destructive to the bodies, tissues, and organs.

posted July 13, 2023

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