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Do You Consume Or Avoid Caffeine?

MyNarcolepsyTeam asked a question 💭
San Francisco, CA
November 4, 2022
 · 
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Answer Summary

Members shared widely varying experiences with caffeine and narcolepsy, with some finding coffee essential for managing daytime sleepiness... Read more

Members shared widely varying experiences with caffeine and narcolepsy, with some finding coffee essential for managing daytime sleepiness while others reported it has no effect at all or even makes them drowsy. Several members described using caffeine strategically alongside prescribed medications like Ritalin, Adderall, or Nuvigil, cutting off intake by early evening to avoid interfering with nighttime sleep, while others shared that caffeine interacts poorly with their medications causing anxiety or simply doesn't provide the wakefulness boost most people experience. A recurring theme was the deeply personal nature of caffeine's impact, with choices ranging from total avoidance due to side effects or other medical conditions, to moderate morning consumption, to relying on multiple energy drinks daily just to get through the day.

A MyNarcolepsyTeam Member

I’ve been trying to cut down on the coffee and stick with Tea. Because Caffeine doesn’t really help my narcolepsy(keeping me awake) . I just drink it for the taste

December 11, 2022
A MyNarcolepsyTeam Member

I don't avoid caffeine but it doesn't do anything for me. Caffeine doesn't help or hinder me.

January 4, 2023
A MyNarcolepsyTeam Member

Strong cup when I wake up and then nothing except an occasional espresso night cap. Nothing keeps me awake.

November 4, 2022
A MyNarcolepsyTeam Member

Multiple red bull energy drinks daily, and coffee occasionally. I wouldn't say it has any real effect on me. With as much medication as I take for my narcolepsy w/ cataplexy it just serves as a Kickstarter with them. I can fall asleep after a full red bull without my meds.

January 13, 2023
A MyNarcolepsyTeam Member

Coffee is great!!

December 15, 2022

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