What Are New Life Hacks You've Learned To Better Manage Your Life With Narcolepsy? | MyNarcolepsyTeam

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What Are New Life Hacks You've Learned To Better Manage Your Life With Narcolepsy?
A MyNarcolepsyTeam Member asked a question 💭
posted March 20, 2023
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A MyNarcolepsyTeam Member

I’m blessed to be retired. I can’t stay in bed after, usually 4 or 5 hours of sleep on XYWAV. I get up quietly, go to the craft room and usually stand to do a project. If I catch myself nodding off, I go back to bed and nap there. Otherwise, my naps are in my recliner when I sit after doing housework, laundry, etc, to rest. I make grocery trips early so there isn’t a lot of traffic. If sleepy, I just postpone trips until the next day. Like I said, I am blessed to be able to adjust when I do errands and activities.
Kathy

posted March 22, 2023
A MyNarcolepsyTeam Member

Becoming more strict in my daily schedule has helped tremendously. Evenings especially. I work from home from 5:30pm to 12:30. I'll take my nightly meds at 11:45 so when I'm through I don't mess around and just go to bed. A schedule is not an easy task. For a little while I couldn't drive because my sleep onset was so sudden. Good luck, stay safe.

posted March 20, 2023
A MyNarcolepsyTeam Member

I had a myocardial infarction in Dec 2022 and a stent was placed in my coronary. With that improved blood flow (to the brain?) my wakefulness during the day has improved a lot!

posted March 20, 2023
A MyNarcolepsyTeam Member

Hi, Pete. I’ll try but I have problems getting a “not so good photo” to where I need it to be to send. I’m 80 and spend a lot of time at the sewing machine making quilted placemats, microwave bowl holders for taking hot bowls out without burning self, I also have made oodles of other things, jewelry included. Yesterday my husband told me I needed to make our spring flag to go out front. So, everything was put aside to work on that. He's been having health problems and wants to go fishing but can’t get very far from a bath house. His brother is coming next month and I may get him to help me get him there.. now, back to the sign. It says
G. F
O. I
I. S
N. H
G. I
N
G
Out beside it I have a fish , with two more tied on a short cane pole stuck in one of my flower pots. He laughed at stripes going the wrong way on my striped bass!
Kathy

posted March 23, 2023
A MyNarcolepsyTeam Member

In my case just need to get a better sleep time when it is time for me to go.
Getting some good hours of sleep do make a difference.But even when I have gotten some good hours of sleep. I still go thru this drowsy sleepy moment

posted March 21, 2023

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