When my spells hit i become paralysised from head to toe. Can't move,talk or worn anyone it is gonna happen. I don't just have one. I have multiple in a roll,then after I have a numb head. My oldest sister says she can tell when I am gonna have one because you can see it in my eyes.
Thank God for Love and Support of Family. You need family to help you through the real tuff times when you get frustrated and feel like throwing in the towel.🐵😇

Iv incounted feeling like.somebody is holding me.down and I'm trying my hardest to get up but I can't but it feels like I'm awake as well but surely I'm not am I going nuts as well 🙃 😅 🙂 x

Absolutely keep searching for a sleep specialist who will help you!!! Because of my medication tolerance situation I had been prescribed everything available (at the time 1990's) I went (thank God) on disability in early 2000's. Then a few years ago I had decided to attempt to get back on "something" to help me function to some degree. I was able to get back in touch with the doctor (Pulmonologist) who initially diagnosed/treated me! I was extremely thankful he was even still in practice! Basically the doctor is kind of "starting over" in regards to the medication.I have decided to see a new doctor closer to where I live. I have my 1st appointment in June I'm excited to see a doctor who specializes in Narcolepsy. So we shall see how it goes.
I very much hope that you find the help you're looking for. Best of luck to you!

I actually can't get meds from a doctor. I was diagnosed in the 90s and quit taking my meds a few years later in favor of over the counter meds. Plus I was young and stupid and didn't think they would help me. All I cared about was making sleep paralysis stop. When I figured out they couldn't help me with that I gave up. A few years ago I tried to get back on them and I can't locate any records because it wasn't computerized then. Doctor out me through the whole cycle again and started making me use a CPAP. This made sleeping even more difficult. After a year I couldn't take it and stopped and the doctor won't do a damn thing for me because I refused the treatment he gave me

I think a little bit of both .!! with normal dreaming I dream of people that have died almost always so crazy but to me the SP is very real to me no matter what a doctor says that's just my own opinion 🙂 Adderall helps a lot now I have to take something else because of shortage I was wondering if you to have a shortage of meds also .I fell out at least 7times just to write this 😃ugh Have A good night no bad dreams .