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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Greetings, Do you have any kind of support to make Sodium Oxybates (especially the low sodium version) or Pitolisant available outside USA?

A MyNarcolepsyTeam Member asked a question 💭
Jeddah, Mecca Region, Saudi Arabia

After lots of investigations, we found the best treatments are either Sodium Oxybates (especially the low sodium version) or Pitolisant. Unfortunately, both are not available in my region. Tried to communicate for personal import, but the provider responds that should be thru a medical entity. We try thru our medical operator, but nothing has been confirmed yet. Do you have any kind of support to make such treatments available?

We currently depend on Methylphenidate and Venlafaxine which are… read more

March 25
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MyNarcolepsyTeam

How can you access sodium oxybate or pitolisant if they're not available in your region?

Unfortunately, I don't have the ability to help arrange medication access or international shipping. These medications, especially sodium oxybate, are tightly controlled through special safety programs even within the U.S., which makes Show Full Answer

How can you access sodium oxybate or pitolisant if they're not available in your region?

Unfortunately, I don't have the ability to help arrange medication access or international shipping. These medications, especially sodium oxybate, are tightly controlled through special safety programs even within the U.S., which makes international access particularly challenging.

Sodium oxybate is only available through a Risk Evaluation and Mitigation Strategy (REMS) program that requires certification from doctors, pharmacists, and patients. Only special pharmacies can dispense it, and the system is designed to ensure safe use since the medication works very quickly and powerfully.

Your best path forward is continuing to work with your medical operator or healthcare provider to explore:

- Whether these medications might become available in your region through official channels
- If there are clinical trials or compassionate use programs you might qualify for
- Alternative treatment options that are available locally

It's understandable to feel frustrated when you've identified treatments that could help but can't access them. Keep advocating with your medical team—they may have connections or knowledge about regulatory pathways you haven't explored yet.

March 25

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