I have been on Lumryz for 6 months. Current dose is 9g. It takes me 2 hours to fall asleep and the medication wears of after 6 hours. Every single night I wake up exactly 6 hrs after taking the medication which means I only got 3 to 4 hours of solid sleep before it wears off. Some nights I am able to easily go back to sleep but most nights I toss and turn until I have to get up. What are your experiences? Is there anything that helps?
I was on it for two months, and even on the highest dose, I didn’t sleep more than two hours. I would wake up having to pee, and would have to crawl to and from the bathroom because of how drugged I felt. Multiple times my husband had to pick me up off the bathroom floor because I couldn’t even make it back to the bedroom. The whole experience was absolutely awful, and I will never go back on it.
i have been on lumryz for over a yr and your situation sounds like something i would be happy with, im also on the 9g but i have zero issues falling to sleep after taken meds but i only sleep for a average of 4 hrs never more sometimes less, its very weird no matter what time i go to sleep or how long i try to stay up before sleeping i can never get more then 4hrs. But the longest i have slept in 4 yrs of being diagnosed is the 4 hrs, but without the medication sleep is terrible i would sleep for a hr an 30 mins then wake and then after that sleep is fragmented i would kill to sleep for 6 hrs
I am also on Lumryz and I have had similar issues. Some nights it would take a lot longer for me to fall asleep and I would wake up at 4 am and just toss and turn for at least an hour to an hour and a half before being able to fall back asleep. I started trying to figure out if my routine might have something to do with it. I noticed that after taking my medication and laying down, I started scrolling on my phone or playing a game. I realized I was sending too much stimulation to my brain when I needed it to calm down. Also, if I had chocolate as my after dinner snack it seemed to cause the same result. Last thing was that even an hour before I laid down to try to go to sleep I was watching true crime shows…basically I was over stimulating my brain and then expecting the medication to completely override all of that! This might not be you at all!! I just know that after I changed all of that, I am now sleeping faster and longer. I hope this helps! Hugs
That sounds genuinely exhausting — working so hard to get quality sleep and still waking up short-changed every night. Many MyNarcolepsyTeam members have shared similar frustrations with sleep medications wearing off too soon, and the struggle to get back to sleep afterward is a very real and common experience.
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