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I have been on Lumryz for 6 months. Current dose is 9g. It takes me 2 hours to fall asleep and the medication wears of after 6 hours. Every single night I wake up exactly 6 hrs after taking the medication which means I only got 3 to 4 hours of solid sleep before it wears off. Some nights I am able to easily go back to sleep but most nights I toss and turn until I have to get up. What are your experiences? Is there anything that helps?

June 5
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A MyNarcolepsyTeam Member

I was on it for two months, and even on the highest dose, I didn’t sleep more than two hours. I would wake up having to pee, and would have to crawl to and from the bathroom because of how drugged I felt. Multiple times my husband had to pick me up off the bathroom floor because I couldn’t even make it back to the bedroom. The whole experience was absolutely awful, and I will never go back on it.

August 14
A MyNarcolepsyTeam Member

i have been on lumryz for over a yr and your situation sounds like something i would be happy with, im also on the 9g but i have zero issues falling to sleep after taken meds but i only sleep for a average of 4 hrs never more sometimes less, its very weird no matter what time i go to sleep or how long i try to stay up before sleeping i can never get more then 4hrs. But the longest i have slept in 4 yrs of being diagnosed is the 4 hrs, but without the medication sleep is terrible i would sleep for a hr an 30 mins then wake and then after that sleep is fragmented i would kill to sleep for 6 hrs

June 19
A MyNarcolepsyTeam Member

I am also on Lumryz and I have had similar issues. Some nights it would take a lot longer for me to fall asleep and I would wake up at 4 am and just toss and turn for at least an hour to an hour and a half before being able to fall back asleep. I started trying to figure out if my routine might have something to do with it. I noticed that after taking my medication and laying down, I started scrolling on my phone or playing a game. I realized I was sending too much stimulation to my brain when I needed it to calm down. Also, if I had chocolate as my after dinner snack it seemed to cause the same result. Last thing was that even an hour before I laid down to try to go to sleep I was watching true crime shows…basically I was over stimulating my brain and then expecting the medication to completely override all of that! This might not be you at all!! I just know that after I changed all of that, I am now sleeping faster and longer. I hope this helps! Hugs

June 17
MyNarcolepsyTeam

That sounds genuinely exhausting — working so hard to get quality sleep and still waking up short-changed every night. Many MyNarcolepsyTeam members have shared similar frustrations with sleep medications wearing off too soon, and the struggle to get back to sleep afterward is a very real and common experience.

Since this Show Full Answer

That sounds genuinely exhausting — working so hard to get quality sleep and still waking up short-changed every night. Many MyNarcolepsyTeam members have shared similar frustrations with sleep medications wearing off too soon, and the struggle to get back to sleep afterward is a very real and common experience.

Since this is a personal experience question, connecting with others on the team who are also on Lumryz would give the most relatable insight into what's working for them. That said, there are some strategies that may help with those restless hours after the medication wears off:

- Wind-down routine — If waking is consistent, preparing mentally for it can reduce anxiety around it. Try keeping lights low and avoiding screens if you wake up.
- Relaxation techniques — Gentle breathing exercises or listening to calming music at low volume can help ease back into sleep.
- Avoid clock-watching — Seeing the time tick by can make it harder to relax back into sleep.
- Keep a medication log — Tracking sleep quality, timing, and dosage patterns can give your doctor useful data to adjust your treatment plan.

It's really worth bringing this pattern up with your sleep specialist. They may consider adjusting the timing, dosage, or adding a complementary approach to help bridge that early-morning gap.

June 5

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