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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyNarcolepsyTeam Member asked a question 💭
Blackville, SC
July 8
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MyNarcolepsyTeam

Yes, many people with narcolepsy do work, though EDS can make it genuinely challenging. Things like staying focused in meetings, avoiding sleep attacks, and keeping up productivity can all be affected.

One MyNarcolepsyTeam member shared that they can't sit for more than an hour without falling asleep, and another mentioned Show Full Answer

Yes, many people with narcolepsy do work, though EDS can make it genuinely challenging. Things like staying focused in meetings, avoiding sleep attacks, and keeping up productivity can all be affected.

One MyNarcolepsyTeam member shared that they can't sit for more than an hour without falling asleep, and another mentioned being written up for dozing off in meetings. So you're definitely not alone in finding work tough.

The good news is that symptoms can often be managed with a combination of:

- Medication – stimulants, oxybates, pitolisant, or solriamfetol
- Scheduled naps – even a 20-minute nap can provide hours of relief
- Workplace accommodations – rest breaks, flexible scheduling, avoiding night shifts
- Tools – AI notetakers, standing desks, recording meetings

Talking to your employer early, before problems arise, can help set up accommodations that make a real difference. It may take some trial and error to find what works best for you, but many people do find a way to stay employed and productive.

July 8
A MyNarcolepsyTeam Member

I worked with N2 and EDS as a paralegal for nearly 30 years, but I had to change medication frequently because of loss of efficacy.
I used Vyvance for 14 years and about 2 years ago I started having brain fog and memory issues.

July 11

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