My name is Bre, I have narcolepsy Type 2. Diagnosed June of 2026. So far I haven't found a medication that works for me. The side effects are awful and because of that my meds have been charged approximately every 2 weeks or less. I haven't been able to drive or go to work because of the side effects. Lumryz is shipped to me to try next. I'm hoping for better results.
Prayer is the key. I tried the same medicine and it felt like some was moving in my brain so I quit meds my body let me know when it's bout to.shut down sometimes
I'm glad you're doing better. I've been on Modafinil, Sunosi, vyvanse and Adderall. I had very bad side effects with all. I'm kind of afraid to try anything else because my anxiety is high from the effects of the other medications. But, at the same time I do want to find what may work for me so I can enjoy my family and life.
I am a mail carrier,, many years before being diagnosed. I would have to climb in the back of my mail truck and take a 10 to 15 minute nap. I just could not function! The heat absolutely made me feel worse! I am better after being put on modafinil but, whenever I see my doctor and explain how my tiredness affects my job, my daily routine… he just raises the dosage of my meds. I’m at 400 mg a day now, and I have to drink an energy drink and take a no doze to complete my day. I’m exhausted all the time.
Heat and narcolepsy can definitely be a tricky combination! There's actually some interesting research suggesting that body temperature plays a role in alertness for people with narcolepsy. A small study found that people with narcolepsy felt more awake after consuming cold food or drinks, which caused a slight drop in body Show Full Answer