Lumryz and narcolepsy | MyNarcolepsyTeam

Connect with others who understand.

sign up Log in
Resources
About MyNarcolepsyTeam
Powered By
Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 2 search results for "Lumryz" in Q&A. To see all results and access other features, sign up for free.

Does Anyone Take Xywav? Does It Help?
A MyNarcolepsyTeam Member asked a question 💭

I’ve been on Xywav for a couple of months and don’t notice much of a difference, if any. I will admit, I do not wake up every night for my second dose. I set alarms. I just never actually wake up. I want to see if I can try the new sodium oxybate, Lumryz. Anyone have any thoughts or experiences like this?

•
View reactions
Has Anyone Else Heard About This?
A MyNarcolepsyTeam Member asked a question 💭

Looks like a new, timed-release version of Xyrem/Xywav might be available soon that will eliminate having to wake up and take a second dose.

https://investors.avadel.com/news-releases/news...

•
View reactions
A MyNarcolepsyTeam Member

MichaelYJ did your 2nd dose get you to sleep? Do you eat your dinner hours before you go to bed?

Just curious if your stomach is full, you will have slow absorption. If your last meal was finished… read more