Wakix and narcolepsy | MyNarcolepsyTeam

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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 8 Search Results for "Wakix"

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Top 5 searches:
My Doctor Prescribed Wakix For Me Because Of My Narcolepsy And Cataplexy. My Insurance Company Is Covering It, Thank Heaven.
A MyNarcolepsyTeam Member asked a question 💭

Is anyone out there taking Wakix? Has it helped you? My concern are side effects, etc. Let me know what you think of it. Thanks!😴

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Has Anybody Had Better Results With WAKIX Vs. Combination Of SUNOSI And XYWAV?
A MyNarcolepsyTeam Member asked a question 💭

I am currently taking SUNOSI during the day and tried to switch to WAKIX because of my cataplexy and sleep paralysis. My insurance would not approve WAKIX until I tried XYWAV so I started XYWAV. I find it almost ridiculous that XYWAV is twice nightly dosing! My anxiety is worse and affecting my overall sleep because half the time I can't get that second dose accomplished between 1-2 am.

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A MyNarcolepsyTeam Member

BrettHansen, can you supply a couple of details for how Xywav changed your life?.. I start it soon.

What Medication Seems To Work The Best For The Majority Of People
A MyNarcolepsyTeam Member asked a question 💭
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A MyNarcolepsyTeam Member

I take 50 mg. of Vyvanse every morning. It is pricey, but keeps me awake for up to 12 hrs. The only downside that I have is one out of four nights I may have trouble sleeping. But I've learned to… read more

Xyrem To Xywave
A MyNarcolepsyTeam Member asked a question 💭

Has anyone changed from xyrem to xywave? What is your experience with either of them? Both have changed the taste, and what foods I eat, has that happened to you?

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A MyNarcolepsyTeam Member

I Also tried the Wakix not on a clinical trial and it did nothing for me. It was like I was not taking medication at all.

What Has Your Doctor Suggested When No Medication Regimen Is Working?
A MyNarcolepsyTeam Member asked a question 💭

The only common recommended medication I have not tried is Wakix. Currently taking high doses of sunosi, nuvigil, and vyvanse daily. Seems like all the regimens work for about 2 weeks then back to feeling like I did prior to diagnosis.

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What Are The Newest Meds For Narcolepsy?
A MyNarcolepsyTeam Member asked a question 💭
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A MyNarcolepsyTeam Member

Please be careful, I just read the drug interactions and it does not interact well with hormonal meds such as birth control or post menopause hormones. I unfortunately can’t use it.

Sleeping Head
A MyNarcolepsyTeam Member asked a question 💭

My names cary.ive taken nuvigal for years .they have mixed in sunosi &ritilan before. I can't get rid of my sleeping head. Anybody have that problem? Advice?

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A MyNarcolepsyTeam Member

Change your sleep routine to be the same every night. Get good nutrition, drink plenty of water, & no junk food. Find a good supplement like Dr. Schulze's Superfood, (my fav energy booster.)

Nuvigil- Will I For Sure Eventually Need To Add Medications?
A MyNarcolepsyTeam Member asked a question 💭

I have read many stories online of people doing well on Nuvigil for awhile, but then as time goes on having to add a "booster" medication halfway through the day. I want to know if I should expect this, or not. Has anyone been on Nuvigil for a long time with no decrease in effectiveness? Some sources also suggest taking a couple days off the medicine to curb resistance. Has anyone had experience with that?

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A MyNarcolepsyTeam Member

I have taken Nuvigil & Adderall for around 12+ years now. They both work good still, but it also depends on what I'm doing that day & how active I am. Also it doesn't matter sometimes if I've taken… read more