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Top 9 search results for "Xywav" in Q&A. To see all results and access other features, sign up for free.

Xywav..I Have Taken Xyrem For Years W/no Problem, I'm 71. Any Benefit To Switching To This New Rx?

A MyNarcolepsyTeam Member asked a question 💭
A MyNarcolepsyTeam Member

PS - I have taken Ritalin and Venlafaxine for years. Ready for a change!

Xyrem To Xywave

A MyNarcolepsyTeam Member asked a question 💭

Has anyone changed from xyrem to xywave? What is your experience with either of them? Both have changed the taste, and what foods I eat, has that happened to you?

A MyNarcolepsyTeam Member

I Also tried the Wakix not on a clinical trial and it did nothing for me. It was like I was not taking medication at all.

What Experiences Do You Guys Have With Xyrem... Does It Work?

A MyNarcolepsyTeam Member asked a question 💭

My doctor is going to start me on Skyrem (Xyrem with less sodium) and I was wondering what people's experiences are with it. Does it work well? Does it cause any negative side effects? Do you still need to take other meds to fight day time sleepiness?

A MyNarcolepsyTeam Member

I take Xyrem and it has really helped me get the life I never thought I could have. Just be careful with it and feel free to call the distributors for any questions! They're super nice!

Has Anybody Had Better Results With WAKIX Vs. Combination Of SUNOSI And XYWAV?

A MyNarcolepsyTeam Member asked a question 💭

I am currently taking SUNOSI during the day and tried to switch to WAKIX because of my cataplexy and sleep paralysis. My insurance would not approve WAKIX until I tried XYWAV so I started XYWAV. I find it almost ridiculous that XYWAV is twice nightly dosing! My anxiety is worse and affecting my overall sleep because half the time I can't get that second dose accomplished between 1-2 am.

A MyNarcolepsyTeam Member

BrettHansen, can you supply a couple of details for how Xywav changed your life?.. I start it soon.

My Doc Said There Is A Medication (name?) Distibuted From A Central Location (highly Controlled). Anybody Know Anything About It?

A MyNarcolepsyTeam Member asked a question 💭

I currently take Modofinal. Some times it works very well and sometimes I am not sure. When discussing this with my doctor, he asked me if I wanted to try the above (he told me the name but I can't remember it). He thought it might be helpful for me. Only one place that it is filled and sent out from?, that sounds a little scary to me. I have been thinking about it because I am tired of falling asleep all the time. It is embarrassing. I have been tinkering with the timing of the two to… read more

A MyNarcolepsyTeam Member

@A MyNarcolepsyTeam Member I feel your pain. Same here. Dexadrine (speed) doesn't work well for me. Could take 40mg and a nap. Just started Vyvanse at it is amazing. In fact I need the Xyrem to… read more

Does Anyone Take Xywav? Does It Help?

A MyNarcolepsyTeam Member asked a question 💭

I’ve been on Xywav for a couple of months and don’t notice much of a difference, if any. I will admit, I do not wake up every night for my second dose. I set alarms. I just never actually wake up. I want to see if I can try the new sodium oxybate, Lumryz. Anyone have any thoughts or experiences like this?

Xywav/xyrem, Tornadoes, And A Non-remote Job... What Do You Do?

A MyNarcolepsyTeam Member asked a question 💭

so for the people that take xywav/xyrem, and happen to live in tornado alley, what do you do when the weather is bad overnight, and you have to work the next day? luckily, im off work right now but the way the recent storms are hitting, if i was working, it would be messing up my medicine schedule and im not lucky enough to have bosses that understand. how do these factors impact you?

A MyNarcolepsyTeam Member

As for myself xywav/xyrem was not a good idea for me. I had too many side effects.😵‍💫

What Medication Seems To Work The Best For The Majority Of People

A MyNarcolepsyTeam Member asked a question 💭
A MyNarcolepsyTeam Member

I take 50 mg. of Vyvanse every morning. It is pricey, but keeps me awake for up to 12 hrs. The only downside that I have is one out of four nights I may have trouble sleeping. But I've learned to… read more

Has Anyone Else Heard About This?

A MyNarcolepsyTeam Member asked a question 💭

Looks like a new, timed-release version of Xyrem/Xywav might be available soon that will eliminate having to wake up and take a second dose.

https://investors.avadel.com/news-releases/news...

A MyNarcolepsyTeam Member

MichaelYJ did your 2nd dose get you to sleep? Do you eat your dinner hours before you go to bed?

Just curious if your stomach is full, you will have slow absorption. If your last meal was finished… read more