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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 5 Search Results for "Xywav"

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Xywav..I Have Taken Xyrem For Years W/no Problem, I'm 71. Any Benefit To Switching To This New Rx?

Xywav..I Have Taken Xyrem For Years W/no Problem, I'm 71. Any Benefit To Switching To This New Rx?

A MyNarcolepsyTeam Member said:

I take both Xywav & modafinil & Ritalin. With the Xywav I hope to wean the other two but I still get sleepy in the afternoon. Not on full dose of Xywav yet. Sleeping in the afternoon is not an option… read more

posted over 1 year ago

Xyrem To Xywave

Xyrem To Xywave

Has anyone changed from xyrem to xywave? What is your experience with either of them? Both have changed the taste, and what foods I eat, has that happened to you?

A MyNarcolepsyTeam Member said:

I'm now taking Sunosi as well. It is expensive but it is worth it, its the only way I can function.

posted 7 months ago

What Narcolepsy Meds Work For You?

What Narcolepsy Meds Work For You?

I've tried almost all of the narcolepsy meds and nothing worked. I'm on Adderall 20mg 3 times a day... which barely work all day, and I take Trazodone 150mg at night (which work great) to sleep.

A MyNarcolepsyTeam Member said:

Have you tried Xyrem or Xywav? Or for daytime, Wakix? Wakix is the first non stimulant narcolepsy med on the market that works directly with your sleep/wake hormone, hypocretin. Changed my life!

posted 19 days ago

My Doc Said There Is A Medication (name?) Distibuted From A Central Location (highly Controlled). Anybody Know Anything About It?

My Doc Said There Is A Medication (name?) Distibuted From A Central Location (highly Controlled). Anybody Know Anything About It?

I currently take Modofinal. Some times it works very well and sometimes I am not sure. When discussing this with my doctor, he asked me if I wanted to try the above (he told me the name but I can't remember it). He thought it might be helpful for me. Only one place that it is filled and sent out from?, that sounds a little scary to me. I have been thinking about it because I am tired of falling asleep all the time. It is embarrassing. I have been tinkering with the timing of the two to… read more

A MyNarcolepsyTeam Member said:

@A MyNarcolepsyTeam Member I feel your pain. Same here. Dexadrine (speed) doesn't work well for me. Could take 40mg and a nap. Just started Vyvanse at it is amazing. In fact I need the Xyrem to… read more

posted about 1 year ago

How Well Does Modefil Or Provigil Work For EDS And /or Cateplexy?

How Well Does Modefil Or Provigil Work For EDS And /or Cateplexy?

A MyNarcolepsyTeam Member said:

I wish you the best of luck with med school. I worked 7pm-7am for 30 years as a nurse & never felt rested. I wasn’t diagnosed until I had been on days for 5 years. For nurses in the hospital, taking a… read more

posted 3 days ago