Quick Links
About MyNarcolepsyTeam
Powered By
Does Cataplexy Worsen?
I have small episodes of cataplexy when I laugh my knees buckle, and sometimes when I force myself to wake up when my body is not ready my knees and neck weaken. I have never had a bad enough episode that I fell down completely, I worry that my cataplexy will worsen over time? Anybody with severe cataplexy start off with small episodes like these?
Dear Corrina. First of all welcome to you and your family
As someone living with that disability since almost 60 decades as it start at 5-7 years old with some partial ones. I can only speak from my… read more
Does Any One Eles Have Narcolepsy1 And Sleep Apnea?
i find that having narcolepsy makes the cpap not worth the anxiety, it does not help me
I have narcolepsy 2 and sleep apnea. Using the CPAP didn't make a significant difference in daytime sleepines but it's better for my heart to use it. So, I do, even though the masks irritate my skin.
Narcolepsy. And Ptsd. Does Anybody Have This Combination?
Yes I have both…..
Does Narcolepsy/cataplexy Get Any Easier The Older You Get Or Even The Longer You Have It?
No you just get old and develop osteoporosis and brittle bones. Most my praying moments( when I have sudden sleep attack), now the naps come with a broken bone as a bonus gift.
Does Anyone Here With Diagnosed Narcolepsy Also Have Fibromyalgia? What About Adult ADHD?
I have fibromyalgia and ADD
Anyone Ever Been Diagnosed With Narcolepsy Type 2 Then Later Experienced Minor Cataplexy-like Symptoms. Like Uncontrollably Sleeping??
I’ve been wondering the same thing. I was diagnosed 21 years ago when I was 28. It took years to get to the diagnosis because my lack of cataplexy symptoms made it harder, in fact they tried to say I… read more
Would You Say You Have Good Days And Bad Days With Narcolepsy?
I have been on Modafinil for over a year. My doctor finally sent me to a sleep specialist and I will have my sleep study and mslt in a couple weeks. I never feel fully rested, but there are some days that I can’t go more than 2-3 hours without a nap. I get very drowsy and my eyelids get heavy. On my bad days, this happens every 2-3hrs all day long.
Strange Cataplexy
Dear members
for three years (But only in some periods) I have a strange symptom, My cataplexy has changed; in these periods it presents itself differently it is as if it were repeated many times during the day but without a valid trigger. I can't figure out if my problem is getting worse. Sleepiness is always the same. As far as I can remember I have had narcolepsy since I was 16 now I am 42. My cataplexy has always been of very short duration, I would say a fraction of a second and it involves… read more
I definitely have Cataplexy worse when I have stress!!
I’ve had Narcolepsy since I was a teen and I’m in my 60’s
Long Or Short Sleepbreaks?
Hello. My son is 11 years old and was diagnosed when he was 7 years old. I have a question about rest during his school day. Today he rests for an hour around 11. I wonder if you would prefer several short sleep breaks instead of one longer one? Do you feel as rested after 60 minutes as after 15 minutes?
My son does not take any medication and school works well and he has good support from his teachers.
I honestly think it’s amazing that he had the self awareness and confidence to say no to the medication, which is another clear indication that you as parents must be an amazing support system for him… read more
Is It Possible To Have Cataplexy Without Narcolepsy?
I can't seem to find any answers on whether or not cataplexy can occur without having narcolepsy what causes the cataplexy?
the answer is yes. You can have even narcolepsy without cataplexy, and as it has been my case, developped cataplexy sometimes partial or full ( as per myself) years after the first effects or bouts of… read more
