When I had a great day at work lol I felt like a robot😂 hate that my boss was there and saw bc on my down day, he was expecting the same performance & I couldn’t. It’s still difficult trying to get my job to understand

I can totally relate to that feeling. My days of feeling good and having energy to get things done are few and far between so when I do feel energized I would overdo it and then pay for it for days after. Now when I feel good I just enjoy the feeling and do about half what I think I can

Totally good days are very rare for me...like once a year. My problem is it always happens when people around me poop out early. I was on vacation 3 years ago at Myrtle Beach. Woke up one day feeling very refreshed. By 6:30, 7 pm i still felt good so wanted to go out for fun. We had dinner at 5:30 and after everyone got their bellies full they were done for the evening. I was so upset because there i sat feeling good and actually had energy and didn't get to go anywhere or do anything. What a waste. I about cried because I knew it would be such a long time before I ever felt that way again.

Anyway I normally overdue things if I feel good. I try to get everything done ive not been able to do due to EDS in one day then pay for it the next day.

Hi Charles,
Nice to meet you. Let's see I have 2 girls 25 and 31. I'm divorced. I am 59. Live in Girard Ohio. Grew up in Hubbard Ohio pretty much all my life till last year. I have 5 brothers and 4 sisters. Parents are in heaven. Mom died of Colon cancer in 1975 and dad of leukemia in 2003. I'm happy and thankful for many things. I have one granddaughter Lily she is a year and A half. Had Narcolepsy since I was ayoung girl. Now your turn then I will continue.

I would have to say that my best days with narcolepsy is always when I am with my niece and nephews, on a weekend and just hanging out at home. They keep me busy, but they also nap so I can nap with them.