I would say before my diagnosis and medication vyvanse x2 a day , EVERYDAY was a bad day with narcolepsy there was no ups and downs it was constant urges to sleep every hour or 2 hours at the most. Since medication I can say a “Good” day is being able to push myself out of bed, & go to work. Most days my eyes will begin to fall at some point during my work day. It’s really rare that I go a full work day without them falling asleep at least momentarily. On these days is usually really busy we’re my body can’t stop to think of sleep. But on these same days is when my nights at home are the worst because my body can’t take anymore. I fall into really deep sleeps followed by facial twitching, and sleep paralysis. All in all I would say that there aren’t really no “Good “ days with narcolepsy, only days that differ in severity I suppose you could say .

Pulmonary

Ok, my obgyn Dr. Has put me on Armodafinil for my naroclepsy, because I had already a CPAP test for my sleep Apnea, and then I got to where started falling asleep within hours after a all night sleep. So , I was told I need to see a lung Dr. To be treated. So I was going to ask what kind of Dr. are you seeing for you treatments?

Yes I know how you are feeling. I have lost 2-3 jobs this past year due to not being able to stay awake throughout the day. I could not stay awake to save my child’s life some times and I would do anything for them. There are times that I just cannot help it. Those that have no experience with this don’t understand. They think we can turn it off or do something different to stop it and it’s not like that. I keep having one tell me to get a sleep apnea machine (that is not what I have, I wish I did because that has a solution), then I have 2 others that keep telling me to get my health in order. As if I had not already thought that. It’s not that simple. Especially when I don’t have a job and I am a single mom. Medication does not help a lot of the time. I’m sorry you are going through this. I wish someone could help all of us.

I have been feeling the same way